Journal of Pediatric Nursing
Volume 18, Issue 1 , Pages 2-11, February 2003

Urban American Indian family caregivers' perceptions of barriers to management of childhood asthma☆☆

Department of Nursing, Bemidji State University, Bemidji, and School of Nursing, University of Minnesota, Minneapolis, MN.

Abstract 

American Indian family caregivers of children with asthma face numerous barriers to effective management of the illness. The purpose of this qualitative, community-based study is to identify those barriers as perceived by family caregivers in a large Midwestern city. An ecological perspective and principles of family-centered care provided the theoretical orientation for the study. Interviews were conducted with 16 urban Ojibwe family caregivers of children with asthma. Five categories of barriers characterize the families' experiences: provider (individual and system), condition-related, family caregiver, socioeconomic, and environmental. Examination of these findings suggests directions for improving care to American Indian children with asthma and their families. Copyright 2003, Elsevier Science (USA). All rights reserved.

 

 Preparation of this article was supported by grants from the National Institute on Disability and Rehabilitation (H133B40019) and the Maternal and Child Health Bureau (MCJ279184).

☆☆ Address correspondence and reprint requests to Ann Garwick, PhD, RN, 6-101 Weaver-Densford Hall, University of Minnesota, 308 Harvard St S.E., Minneapolis, MN 55455. E-mail: garwi001@umn.edu.

PII: S0882-5963(02)43903-6

doi:10.1053/jpdn.2003.2

Journal of Pediatric Nursing
Volume 18, Issue 1 , Pages 2-11, February 2003