Journal of Pediatric Nursing
Volume 20, Issue 5 , Pages 326-334 , October 2005

The Initiative for Pediatric Palliative Care: An Interdisciplinary Educational Approach for Healthcare Professionals

  • David M. Browning, MSW, BCD

      Affiliations

    • Corresponding Author InformationAddress correspondence and reprint requests to David M. Browning, MSW, BCD, Education Development Center, Inc., 55 Chapel St., Newton, MA 02458.
    • ,
  • Mildred Z. Solomon, EdD
    • ,
  • for the Initiative for Pediatric Palliative Care (IPPC) Investigator Team

References 

  1. Browning D. Module 4: Responding to suffering and bereavement. (Activity 4: The Experience of the Family During a Child's Illness). In:  Solomon MZ,  Browning D,  Dokken D,  Fleischman A,  Heller KS,  Levetown M, et al. editor. The Initiative for Pediatric Palliative Care Curriculum. Newton, MA: Education Development Center, Inc.; 2003;Also available from www.ippcweb.org/curriculum.asp
  2. Browning, D., Dokken, D. (2002a). What matters to families: Speaking the same language (videotape). The Initiative for Pediatric Palliative Care Curriculum. Newton, MA: Education Development Center, Inc.
  3. Browning, D., Dokken, D. (2002b). What matters to families: Knowing who we are (videotape). The Initiative for Pediatric Palliative Care Curriculum. Newton, MA: Education Development Center, Inc.
  4. Browning, D., Rushton, C. (2002). What matters to families: Big choices, little choices (videotape). The Initiative for Pediatric Palliative Care Curriculum. Newton, MA: Education Development Center, Inc.
  5. Cassidy RC, Fleischman AR. Pediatric ethics: From principles to practice. Monographs in clinical pediatrics. The Netherlands: Harwood Academic Publishers; 1996;
  6. Contro N, et al. Family perspectives on the quality of pediatric palliative care. Archives of Pediatrics & Adolescent Medicine. 2002;156:14–19
  7. Galloway KS, Yaster M. Pain and symptom control in terminally ill children. Pediatric Clinics of North America. 2000;47:711–746
  8. Guyer B, Freedman MA, Strobino DM, Sondik EJ. Annual summary of vital statistics. Trends in the health of Americans during the 20th century. Pediatrics. 2000;106:1307–1317
  9. A guide to the development of children's palliative care services. London, England: The Association of Children with Life-threatening Conditions or Terminal Conditions and Their Families and the Royal College of Paediatrics and Child Health; 1997;
  10. Hardart K, Heller KS, Solomon MZ, for The Initiative for Pediatric Palliative Care . Clinicians' perspectives on pediatric palliative care: What hinders, what helps. Unpublished manuscript. Newton, MA: Education Development Center, Inc.; 2002;
  11. Heller KS, Solomon MZ. Continuity of care and caring: What matters to parents of children with life-threatening conditions. Journal of Pediatric Nursing. 2005;5:335–346
  12. Institute of Medicine. In:  Field MJ,  Behrman RE editor. When Children Die: Improving Palliative and End-of-Life Care for Children and Their Families. Washington, DC: National Academies Press; 2003;
  13. Johnson B, Jeppson ES, Redburn L. Caring for children and families: Guidelines for hospitals. Bethesda, MD: Association for the Care of Children's Health; 1992;
  14. Levetown M, Dokken D, Fleischman A, Heller KS, Jose WS, Rushton C, et al. A pediatric palliative care institutional self-assessment tool (ISAT). Newton, MA: Education Development Center, Inc.; 2002;Also available at: www.ippcweb.org/quality.asp
  15. Meyer E, et al. Parental perspectives on end-of-life care in the pediatric intensive care unit. Critical Care Medicine. 2002;30:226–231
  16. Sahler OJ, Frager G, Levetown M, Cohn F, Lipson M. Medical education about end-of-life care in the pediatric setting: Principles, challenges and opportunities. Pediatrics. 2000;105:575–584
  17. Schon D. The reflective practitioner: How professionals think in action. New York: Basic Books; 1983;
  18. Solomon MZ, Sellers D, Heller KH, Dokken D, Levetown M, Rushton C, et al. New research in pediatric end-of-life care. In: Presentation, American Society of Bioethics and Humanities, Salt Lake City. 2000;
  19. Tervalon M, Murray-Garcia J. Cultural humility versus cultural competence: A critical distinction in defining physician training outcomes in multicultural education. Journal of Health Care for the Poor and Underserved. 1998;9:117–124
  20. Wolfe J, Grier H, Klar N, Levin S, Ellenbogen J, Salem-Schatz S, et al. Symptoms and suffering at the end of life in children with cancer. New England Journal of Medicine. 2000;342:326–333

PII: S0882-5963(05)00047-3

doi: 10.1016/j.pedn.2005.03.004

Journal of Pediatric Nursing
Volume 20, Issue 5 , Pages 326-334 , October 2005

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