Journal of Pediatric Nursing
Volume 23, Issue 2 , Pages 101-119 , April 2008

Fathers of Children and Adolescents With Diabetes: What Do We Know?

  • Carol Dashiff, PhD

      Affiliations

    • Corresponding Author InformationCorresponding author. Carol Dashiff, PhD, School of Nursing, University of Alabama at Birmingham, 1530 3rd Avenue South, Birmingham, AL 35294-1210.
    • ,
  • Shannon Morrison, MSN
    • ,
  • John Rowe, PhD

References 

  1. Abindin RR. Parenting stress index (PSI) manual—Manual and administration booklet. Charlottesville, VA: Pediatric Psychology Press; 1983;
  2. Achenbach TM, Edelbrock C. Behavioral problems and competencies reported by parents of normal and disturbed children aged four through sixteen. Monographs of the Society for Research in Child Development. 1991;46:188
  3. Amer K. Children's adaptation to insulin dependent diabetes mellitus: A critical review of literature. Pediatric Nursing. 1999;11:52–60
  4. Ammons RB, Ammons CH. Use and evaluation of the IES test: Partial summary through December 1977. Perceptual and Motor Skills. 1977;1076–1078
  5. Anderson BJ, Auslander WF, Jung KC, Miller P, Santiago JV. Assessing family sharing of diabetes responsibilities. Journal of Pediatric Psychology. 1990;15:477–492
  6. Auslander WF, Bubb J, Rogge M, Santiago JV. Family stress and resources: Potential areas of intervention in children recently diagnosed with diabetes. Health and Social Work. 1993;18:101–113
  7. Auslander WF, Haire-Joshu D, Rogge M, Santiago JV. Predictors of diabetes knowledge in newly diagnosed children and parents. Journal of Pediatric Psychology. 1991;16:213–228
  8. Azar R, Solomon CR. Coping strategies of parents facing child diabetes mellitus. Journal of Pediatric Nursing. 2001;16:418–428
  9. Beck AT. Depression. Clinical, experimental, and theoretical aspects. New York: Harper & Row; 1967;
  10. Caplan PJ, Hall-McCorquodale I. Mother-blaming in major clinical journals. American Journal of Orthopsychiatry. 1985;55:345–353
  11. Chaney JM, Mullins LL, Frank RG, Mace LD, Kashani JH, Goldstein DL. Transactional patterns of child, mother, and father adjustment in insulin-dependent diabetes mellitus: A prospective study. Journal of Pediatric Psychology. 1997;22:229–244
  12. Collier J, Pattison H, Watson A, Sheard C. Parental information needs in chronic renal failure and diabetes mellitus. European Journal of Pediatrics. 2001;160:31–36
  13. Crase SJ, Clark SG, Pease D. Iowa Parent Behavior Manual. Ames, IA: Iowa State University Research Foundation; 1978;
  14. Cromwell R, Fournier D, Kvebaek D. The Kvebaek Family Sculpture Technique: A diagnostic and research tool in family therapy. Jonesboro, TN: Pilgrimage; 1980;
  15. Dashiff CJ. Parents' perceptions of diabetes in adolescent daughters and its impact on the family. Journal of Pediatric Nursing. 1993;8:361–369
  16. Dashiff CJ. Self- and dependent-care responsibility of adolescents with IDDM and their parents. Journal of Family Nursing. 2003;9:166–183
  17. DCCT: Diabetes Control and Complications Trial Research Group . Diabetes Control and Complications Trial: The effect of intensive treatment of diabetes on the development and progression of long-term complications in insulin-dependent diabetes mellitus. New England Journal of Medicine. 1983;329:977–986
  18. DeRogatis A. Brief symptom checklist: Scoring and procedures manual. Baltimore, MD: Clinical Psychometrics Research; 1983;
  19. Derogatis L. Symptom checklist 90-revised: Administration, scoring and procedures manual II. Towson, MD: Clinical Psychometric Research; 1983;
  20. Derogatis LR, Lipman RS, Covi L. SCL-90: An outpatient psychiatric rating scale—A preliminary report. Psychopharmacology Bulletin. 1973;9:13–27
  21. Dombrose LA, Slobin MS. The IES test. Perceptual and Motor Skills. 1958;8:347–389
  22. Eiser C, Havermans T, Kirby R, Eiser JR, Pancer M. Coping and confidence among parents of children with diabetes. Disability and Rehabilitation. 1993;15:10–18
  23. Eiser C, Havermans T, Pancer M, Eiser JR. Adjustment to chronic disease in relation to age and gender: Mothers' and fathers' reports of their children's behavior. Journal of Pediatric Psychology. 1992;17:261–275
  24. Ellsworth RB. CAAP Scale: The measurement of child and adolescent adjustment. Roanoke, VA: Institute for Program Evaluation; 1979;
  25. Foe EB, Cashman L, Jaycox L, Perry K. The validation of a self-report measure for posttraumatic stress disorder: The Posttraumatic Diagnostic Scale. Psychological Assessment. 1997;9:445–451
  26. Folkman S, Lazarus RS. Manual of Ways of Coping Questionnaire. Palo Alto, CA: Consulting Psychologists Press; 1988;
  27. Forsander G, Persson B, Sundelin J, Berglund E, Snellman K, Hesstrom R. Metabolic control in children with insulin-dependent diabetes mellitus 5 y after diagnosis. Early detection of patients at risk for poor metabolic control. Acta Paediatrica. 1998;87:857–864
  28. Gavin L, Wysocki T. Associations of paternal involvement in disease management with maternal and family outcomes in families with children with chronic illness. Journal of Pediatric Psychology. 2006;31:481–489
  29. Grossman HU, Brink S, Hauser ST. Self-efficacy in adolescent girls and boys with insulin-dependent diabetes mellitus. Diabetes Care. 1987;10:321–329
  30. Grotevant HD, Cooper CR. Patterns of interaction in family relationships and the development of identity exploration in adolescence. Child Development. 1985;56:415–428
  31. Hackett F, Court S, Matthews J, McCowen C, Parkin J. Do education groups help diabetics and their parents?. Archives of Disease in Childhood. 1989;64:997–1003
  32. Hamilton M. The assessment of anxiety states by rating. British Journal of Medical Psychology. 1959;32:50–55
  33. Hamilton M. Development of a rating scale for primary depressive illness. British Journal of Clinical Psychology. 1967;6:278–296
  34. Hatton DL, Canam C, Thorne S, Hughes A. Parents' perceptions of caring for an infant or toddler with diabetes. Journal of Advanced Nursing. 1995;22:569–577
  35. Hauser ST, Jacobson AM, Wertlieb D, Weiss-Perry B, Follansbee D, Wolfsdorf J, et al. Children with recently diagnosed diabetes: Interactions with their families. Health Psychology. 1986;5:273–296
  36. Hauser, S. T., Weiss, B., Follansbee, D., Powers, S., Jacobson, A., Noam, G., et al. (1986). The constraining and enabling coding system manual (unpublished manuscript).
  37. Henley LD, Hill ID. Global and specific information needs of cystic fibrosis patients and their families. Pediatrics. 1990;85:1015–1021
  38. Hodges K, Kline J, Stern L, Cytryn L, McKnew D. The development of a child assessment schedule for research and clinical use. Journal of Abnormal Child Psychology. 1982;10:173–189
  39. Hollingshead, A. B. (1975). Four Factor Index of Social Status (unpublished monograph). Yale University.
  40. Johnson S, Pollak T, Silverstein J, Rosenbloom A, Spillar R, McCallum M, et al. Cognitive and behavioural knowledge about insulin-dependent diabetes among children and parents. Pediatrics. 1982;69:708–713
  41. Kabakoff RI, Miller IW, Bishop DS, Epstein NB, Keitner GI. A psychometric study of the McMaster Family Assessment Device in psychiatric, medical and nonclinical samples. Journal of Family Psychology. 1990;3:431–439
  42. Kovacs M, Finkelstein R, Feinberg TL, Crouse-Novack M, Paulauskas S, Pollock M. Initial psychologic responses of parents to the diagnosis of insulin-dependent diabetes mellitus in their children. Diabetes Care. 1985;8:568–575
  43. Lamb ME. The role of the father in child development. Hoboken, NJ: Wiley; 2004;
  44. Landolt MA, Ribi K, Laimbacher J, Vollrath M, Gnehm HE, Sennhauser FH. Brief report: Posttraumatic stress disorder in parents of children with newly diagnosed type 1 diabetes. Journal of Pediatric Psychology. 2002;27:647–652
  45. Lawler MK, Volk R, Viviani N, Mengel MB. Individual and family factors impacting diabetic control in the adolescent: A preliminary study. Maternal–Child Nursing Journal. 1990;19:331–345
  46. Leonard BJ, Kratz BJ, Skay CL, Rheinberger MM. Comparison of mother–father perceptions of their child's self-management of diabetes. Issues in Comprehensive Pediatric Nursing. 1997;20:69–87
  47. May J. Fathers: The forgotten parent. Pediatric Nursing. 1996;22:243–271
  48. McCubbin HI, Comeau JK. Family inventory of resources for management. In:  McCubbin HI,  Thompson AI editor. Family assessment inventories for research and practice. Madison: University of Wisconsin; 1987;p. 145–160
  49. McCubbin HI, McCubbin MA, Patterson JM, Cauble AE, Wilson LR, Warwick W. CHIP—Coping Health Inventory for Parents: An assessment of parental coping patterns in the care of the chronically ill child. Journal of Marriage and the Family. 1982;45:359–376
  50. McCubbin HI, Nevin RS, Cauble AE, Larsen A, Comeau JK, Patterson JM. Family coping with chronic illness: The case of cerebral palsy. In:  McCubbin HI,  Cauble E,  Patterson JM editor. Family stress, coping and social support. Springfield, IL: Charles C. Thomas; 1982;p. 169–188
  51. McCubbin HI, Patterson JM. Family adaptation to crisis. In:  McCubbin HI,  Cauble AE,  Patterson JM editor. Family stress, coping and social support. Springfield, IL: Charles C. Thomas; 1982;p. 26–48
  52. McCubbin HI, Patterson JM. Family inventory of life events and changes. In:  McCubbin HI,  Thompson AI editor. Family assessment inventories for research and practice. Madison: University of Wisconsin; 1987;p. 81–98
  53. McDougal J. Promoting normalization in families with preschool children with type I diabetes. Journal for Specialists in Pediatric Nursing. 2002;7:113–121
  54. Moos RH, Moos BS. Family Environment Scale manual. Palo Alto, CA: Consulting Psychologists Press; 1981;
  55. Patterson J. Family systems perspective for working with youth with disability. Pediatrician. 1991;18:129–141
  56. Phares V, Compas BE. The role of fathers in child and adolescent psychopathology: Make room for daddy. Psychological Bulletin. 1992;111:387–412
  57. Ryden O, Nevander L, Johnsson P, Westbom L, Sjoblad S. Diabetic children and their parents: Personality correlates of metabolic control. Acta Paediatrica Scandinavia. 1990;79:1204–1212
  58. Seiffge-Krenke I. “Come on, say something, Dad!”: Communication and coping in fathers of diabetic adolescents. Journal of Pediatric Psychology. 2002;27:439–450
  59. Sensky T, Stevenson K, Magrill L, Petty R. Family expressed emotion in non-psychiatric illnesses: Adaptation of the Camberwell Family Interview to the families of adolescents with diabetes. International Journal of Methods in Psychiatric research. 1991;1:39–51
  60. Spanier GB. Measuring dyadic adjustment: New scales for assessing the quality of marriage and similar dyads. Journal of Marriage and the Family. 1976;38:15–27
  61. Standen P, Hinde F, Lee P. Family involvement and metabolic control of childhood diabetes. Diabetic Medicine. 1985;2:137–140
  62. Stein R, Riessman C. Development of an impact on family scale. Medical Care. 1980;18:465–472
  63. Stern SB, Smith CA, Jang SJ. Urban families and adolescent mental health. Social Work Research. 1999;23:15–27
  64. Sullivan-Bolyai S, Deatrick J, Gruppuso P, Tamborlane W, Grey M. Mothers' experiences raising young children with type 1 diabetes. Journal for Specialists in Pediatric Nursing. 2002;7:93–103
  65. Sullivan-Bolyai S, Deatrick J, Gruppuso P, Tamborlane W, Grey M. Constant vigilance: Mothers' work parenting young children with type 1 diabetes. Journal of Pediatric Nursing. 2003;18:21–29
  66. Sullivan-Bolyai S, Grey M, Deatrick J, Gruppuso P, Giraitis P, Tamborlane W. Helping other mothers effectively work at raising young children with type 1 diabetes. Diabetes Educator. 2004;30:476–484
  67. Sullivan-Bolyai S, Knafl K, Deatrick J, Grey M. Maternal management behaviors for young children with type 1 diabetes. American Journal of Maternal Child Nursing. 2003;28:160–166
  68. Sullivan-Bolyai S, Knafl K, Tamborlane W, Grey M. Parents' reflections on managing their children's diabetes with insulin pumps. Journal of Nursing Scholarship. 2004;36:316–323
  69. Wallston BS, Wallston KA. Locus of control and health: A review of the literature. Health Education Monographs. 1978;6:107–117
  70. Whittemore R, Knafl K. The integrative review: Updated methodology. Journal of Advanced Nursing. 2005;52:546–553
  71. Witkin HA, Goodenough DR. Field dependence and interpersonal behavior. Psychology Bulletin. 1977;84:661–689
  72. Worrall-Davies A, Owens D, Howland P, Haigh D. The effect of parental expressed emotion in children with type I diabetes: Parental expressed emotion and glycaemic control in children. Journal of Psychosomatic Research. 2002;53:107–113
  73. Wysocki T, Gavin L. Psychometric properties of a new measure of fathers' involvement in the management of pediatric chronic diseases. Journal of Pediatric Psychology. 2004;29:231–240

PII: S0882-5963(07)00299-0

doi: 10.1016/j.pedn.2007.08.007

Journal of Pediatric Nursing
Volume 23, Issue 2 , Pages 101-119 , April 2008

Article Tools