Journal of Pediatric Nursing
Volume 26, Issue 3 , Pages 186-199 , June 2011

Differences on Psychosocial Outcomes Between Male and Female Caregivers of Children With Life-Limiting Illnesses

  • Monica Schneider, RN, MScN

      Affiliations

    • School of Nursing, Canadore College, North Bay, ON, Canada
    • ,
  • Rose Steele, RN, PhD

      Affiliations

    • School of Nursing, Faculty of Health, York University, Toronto, ON, Canada
    • Corresponding Author InformationCorresponding author: Rose Steele, RN, PhD.
    • ,
  • Susan Cadell, MSW, PhD

      Affiliations

    • Faculty of Social Work, Wilfrid Laurier University, Waterloo, Ontario, Canada
    • ,
  • David Hemsworth, PhD

      Affiliations

    • School of Business, Nipissing University, North Bay, ON, Canada

References 

  1. Allan MM, Giles M. Psychometric properties of Scheier and Carver's Life Orientation Test in a sample of Australian prisoners. Psychological Reports. 2008;103:305–322
  2. Aluja A, Rolland JP, Garcia LF, Rossier J. Dimensionality of the Rosenberg Self-Esteem Scale and its relationships with the three- and the five-factor personality models. Journal of Personality Assessment. 2007;88:246–249
  3. Bonner MJ, Hardy KK, Willard VW, Hutchinson KC. Brief report: Psychosocial functioning of fathers as primary caregivers of pediatric oncology patients. Journal of Pediatric Psychology. 2007;32:851–856
  4. Brazil K, Thabane L, Foster G, Bedard M. Gender differences among Canadian spousal caregivers at the end of life. Health and Social Care in the Community. 2009;17:159–166
  5. Broome M. Children and families in health and illness. Thousand Oaks, CA: Sage; 1998;
  6. Cadell S. The sun always comes out after it rains: Understanding posttraumatic growth in HIV caregivers. Health & Social Work. 2007;32:169–176
  7. Cadell S, Regehr C, Hemsworth D. Factors contributing to posttraumatic growth: A proposed structural equation model. American Journal of Orthopsychiatry. 2003;73:279–287
  8. Cadell S, Siden H, Davies B, Steele R, Straatman L, Hemsworth D, et al. Caregiving parents of children with life-limiting illnesses: Beyond stress and coping to growth. Canadian Institutes of Health Research grant MOP-79526. Waterloo, ON: Wilfrid Laurier University; 2006;
  9. Cole BS, Hopkins CM, Tisak J, Steele JL, Carr BI. Assessing spiritual growth and spiritual decline following a diagnosis of cancer: Reliability and validity of the spiritual transformation scale. Psycho-Oncology. 2008;17:112–121
  10. Cook JA. Influence of gender on the problems of parents of fatally ill children. Journal of Psychosocial Oncology. 1984;2:71–91
  11. Curtis McMillen J, Fisher RH. The perceived benefit scales: Measuring perceived positive life changes after negative events. Social Work Research. 1998;22:173–187
  12. Davies B, Gudmundsdottir M, Worden B, Orloff S, Sumner L, Brenner P. “Living in the dragon's shadow” fathers' experiences of a child's life-limiting illness. Death Studies. 2004;28:111–135
  13. Davis MC, Matthews KA, Twamley EW. Is life more difficult on Mars or Venus? A meta-analytic review of sex differences in major and minor life events.. Annals of Behavioural Medicine. 1999;21:83–97
  14. Dumont S, Fillion L, Gagnon P, Bernier N. A new tool to assess family caregivers' burden during end-of-life care. Journal of Palliative Care. 2008;24:151–192
  15. Elliot Brown KA, Barbarin OA. Gender differences in parenting a child with cancer. Social Work in Health Care. 1996;22:53–71
  16. Engelkemeyer SM, Marwit SJ. Posttraumatic growth in bereaved parents. Journal of Traumatic Stress. 2008;21:344–346
  17. Folkman S. Positive psychological states and coping with severe stress. Social Science Medicine. 1997;45:1207–1221
  18. Gallicchio L, Siddiqi N, Langenberg P, Baumgarten M. Gender differences in burden and depression among informal caregivers of demented elders in the community. International Journal of Geriatric Psychiatry. 2002;17:154–163
  19. Given B, Wyatt G, Given C, Sherwood P, Gift A, DeVoss D, et al. Burden and depression among caregivers of patients with cancer at the end of life. Oncology Nursing Forum. 2004;31:1105–1116
  20. Guiliano AJ, Mitchell RE, Clark PG, Harlow LL, Rosenbloom D. The meaning in caregiving scale: Factorial and conceptual dimensions. In: Poster session presented at the second annual convention of the American Psychological Society, Dallas, Texas. 1990;
  21. Hagedoorn M, Sanderman R, Bolks HN, Tuinstra J, Coyne JC. Distress in couples coping with cancer: A meta-analysis and critical review of role and gender effects. Psychological Bulletin. 2008;134:1–30
  22. Hatch RL, Burg MA, Naberhaus DS, Hellmich LK. The spiritual involvement and beliefs scale: Development and testing of a new instrument. Journal of Family Practice. 1998;46:476–486
  23. Hatcher J, Hall LA. Psychometric properties of the Rosenberg Self-Esteem Scale in African-American single mothers. Issues in Mental Health Nursing. 2009;30:70–77
  24. Health Canada . National profile of family caregivers in Canada—2002: Final report. Retrieved June 17, 2009, from http://www.hc-sc.gc.ca/english/pdf/care/nat_profile02.pdf2002;
  25. Heaman DJ. Perceived stressors and coping strategies of parents who have children with developmental disabilities: A comparison of mothers with fathers. Journal of Pediatric Nursing. 1995;10:311–320
  26. Helgeson VS, Reynolds KA, Tomich PL. A meta-analytic review of benefit finding and growth. Journal of Consulting and Clinical Psychology. 2006;74:797–816
  27. Herzberg PY, Glaesmer H, Hoyer J. Separating optimism and pessimism: A robust psychometric analysis of the revised Life Orientation Test (LOT-R). Psychological Assessment. 2006;18:433–438
  28. Hudson P. A critical review of supportive interventions for family caregivers of patients with palliative-stage cancer. Journal of Psychosocial Oncology. 2004;22:77–92
  29. James K, Keegan-Wells D, Hinds P, Kelly KP, Bond D, Hall B, et al. The care of my child with cancer: Parents' perceptions of caregiving demands. Journal of Pediatric Oncology Nursing. 2002;19:218–228
  30. Jones JB, Neil-Urban S. Father to father: Focus groups of fathers of children with cancer. Social Work in Health Care. 2003;37:41–61
  31. Katz S. Gender differences in adapting to a child's chronic illness: A causal model. Journal of Pediatric Nursing. 2002;17:257–269
  32. Kim Y. Benefit finding in the cancer caregiving experience. Psychosomatic Medicine. 2007;69:283–291
  33. Lai DWL, Luk PKF, Andruske CL. Gender differences in caregiving: A case in Chinese Canadian caregivers. Journal of Women & Aging. 2007;19:161–178
  34. Lazarus RS, Folkman S. Stress, appraisal and coping. New York: Springer; 1984;
  35. Lee C. Health, stress and coping among women caregivers: A review. Journal of Health Psychology. 1999;4:27–40
  36. Linley PA, Joseph S. Positive change following trauma and adversity: A review. Journal of Traumatic Stress. 2004;17:11–21
  37. Litwinczuk KM, Groh CJ. The relationship between spirituality, purpose in life, and well-being in HIV-positive persons. Journal of the Association of Nurses in AIDS Care. 2007;18:13–22
  38. Lutzky SM, Knight BG. Explaining gender differences in caregiver distress: The roles of emotional attentiveness and coping styles. Psychology and Aging. 1994;9:513–519
  39. Marks NF, Lambert JD, Choi H. Transitions to caregiving, gender and psychological well-being: A prospective U.S. national study. Journal of Marriage and Family. 2002;64:657–667
  40. Nolen-Hoeksema S. Gender differences in depression. Current Directions in Psychological Science. 2001;10:173–176
  41. Noonan AE, Tennstedt SL. Meaning in caregiving and its contribution to caregiver well-being. Gerontologist. 1997;37:785–794
  42. Park CL, Cohen LH, Murch RL. Assessment and prediction of stress-related growth. Journal of Personality. 1996;64:71–105
  43. Pearlin LI, Mullan JT, Semple SJ, Skaff MM. Caregiving and the stress process: An overview of concepts and their measures. The Gerontologist. 1990;30:583–594
  44. Polatinsky S, Esprey Y. An assessment of gender differences in the perception of benefit resulting from the loss of a child. Journal of Traumatic Stress. 2000;13:709–718
  45. Radloff LS. The CES-D scale: A self report depression scale for research in the general population. Applied Psychological Measurement. 1977;1:385–401
  46. Rallison L, Houger Limacher L, Clinton M. Future echoes in pediatric palliative care: Becoming sensitive to language. Journal of Palliative Care. 2006;22:99–104
  47. Reker GT, Peacock EJ, Wong PTP. Meaning and purpose in life and wellbeing: A lifespan perspective. Journal of Gerontology. 1987;42:44–49
  48. Rosenberg M. Society and the adolescent self-image. Princeton, NJ: Princeton University Press; 1965;
  49. Scheier MF, Carver CS, Bridges MW. Distinguishing optimism from neurotiscism (and trait anxiety, self-mastery, and self-esteem): A reevaluation of the life orientation test. Journal of Personality and Social Psychology. 1994;67:1063–1078
  50. Shafer AB. Meta-analysis of the factor structures of four depression questionnaires: Beck, CES-D, Hamilton, and Zung.. Journal of Clinical Psychology. 2006;62:123–146
  51. Sloper P. Predictors of distress in parents of children with cancer: A prospective study. Journal of Pediatric Psychology. 2000;25:79–91
  52. Steele R. Trajectory of certain death at an unknown time: Children with neurodegenerative life-threatening illnesses. Canadian Journal of Nursing Research. 2000;32:49–67
  53. Steele R. Experiences of families in which a child has a prolonged terminal illness: Modifying factors. International Journal of Palliative Nursing. 2002;8:418–434
  54. Steele R, Bosma H, Fletcher Johnston M, Cadell S, Davies B, Siden H, et al. Research priorities in pediatric palliative care: A Delphi study. Journal of Palliative Care. 2008;24:229–239
  55. Steele R, Davies B. Impact on parents when a child has a progressive, life-threatening illness. International Journal of Palliative Nursing. 2006;12:576–585
  56. Swicket R, Hittner J. Social support coping mediates the relationship between gender and posttraumatic growth. Journal of Health Psychology. 2009;14:387–393
  57. Taku K, Cann A, Calhoun LG, Tedeschi RG. The factor structure of the Posttraumatic Growth Inventory: A comparison of five models using confirmatory factor analysis. Journal of Traumatic Stress. 2008;21:158–164
  58. Tamres LK, Janicki D, Helgeson VS. Sex differences in coping behaviours: A meta-analytic review and an examination of relative coping. Personality and Social Psychology Review. 2002;6:2–30
  59. Tedeschi RG, Calhoun LG. The Posttraumatic Growth Inventory: Measuring the positive legacy of trauma. Journal of Traumatic Stress. 1996;9:455–471
  60. Tedeschi RG, Calhoun LG. Posttraumatic growth: Conceptual foundations and empirical evidence. Psychological Inquiry. 2004;15:1–18
  61. Tedeschi RG, Kilmer RP. Assessing strengths, resilience, and growth to guide clinical interventions. Professional Psychology: Research and Practice. 2005;36:230–237
  62. Vance JC, Boyle FM, Najman JM, Thearle MJ. Gender differences in parental psychological distress following perinatal death or sudden infant death syndrome. British Journal of Psychiatry. 1995;167:806–811
  63. Ware J, Raval H. A qualitative investigation of fathers' experiences of looking after a child with a life-limiting illness, in process and in retrospect. Clinical Child Psychology and Psychiatry. 2007;12:549–565
  64. Wijnberg-Williams BJ, Kamps WA, Klip C, Hoekstra-Weebers JEHM. Psychological distress and the impact of social support on fathers and mothers of pediatric cancer patients: Long-term prospective results. Journal of Pediatric Psychology. 2006;31:785–792
  65. World Health Organization . WHO definition of palliative care. Retrieved May 13, 2009, from http://www.who.int/cancer/palliative/definition/en/1998;
  66. Yeh C, Wenjun Li MS. Adaptational process of parents of pediatric oncology patients. Pediatric Hematology and Oncology. 2000;17:119–131

PII: S0882-5963(10)00037-0

doi: 10.1016/j.pedn.2010.01.007

Journal of Pediatric Nursing
Volume 26, Issue 3 , Pages 186-199 , June 2011

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