This paper is only available as a PDF. To read, Please Download here.
Abstract
Data collection for a multimeasure, longitudinal study of the impact of childhood
cancer on families was begun in 1978 and continued until 1984. Parents—and children
and siblings, where appropriate—were interviewed. Additional data were obtained by
the use of questionnaires and projective techniques. This article describes findings
from the analysis of parental interview data from 10 families. Families with a surviving
child and families whose child died were included in the sample. Our results suggest
that, following the diagnosis of childhood cancer, chronic uncertainty impairs parental
ability to adequately appraise the health status of the diagnosed child and the younger
siblings of the deceased child.
To read this article in full you will need to make a payment
Purchase one-time access:
Academic & Personal: 24 hour online accessCorporate R&D Professionals: 24 hour online accessOne-time access price info
- For academic or personal research use, select 'Academic and Personal'
- For corporate R&D use, select 'Corporate R&D Professionals'
Subscribe:
Subscribe to Journal of Pediatric Nursing: Nursing Care of Children and FamiliesAlready a print subscriber? Claim online access
Already an online subscriber? Sign in
Register: Create an account
Institutional Access: Sign in to ScienceDirect
References
- Family boundary ambiguity: A new variable in family stress theory.Family Process. 1984; 23: 535-546
- The seven kinds of denial.in: Breznitz S. The denial of stress. International Universities Press, New York1983
- Ambiguity and the search for meaning: Childhood leukemia in the modern clinical context.Social Science and Medicine. 1981; 15: 115-123
- Vying for a winning position: Management style of the chronically ill.Research in Nursing and Health. 1984; 7: 181-188
- Rethinking family stress theory: Definitional aspects.in: Contemporary theories about the family. vol. 1. The Free Press, New York1979
- Coping with waiting: Psychiatric intervention and study in the waiting room of a pediatric oncology clinic.Comprehensive Psychiatry. 1971; 12: 67-81
- Psychosocial care of the child cured of cancer.Pediatric Nursing. 1985; 11: 91-93
- The Damocles syndrome: Psychosocial consequences of surviving childhood cancer.McGraw-Hill, New York1981
- Stress appraisal and coping.Springer, New York1984
- Genetic counseling—The postcounseling period: I. Parents' perceptions of uncertainty.American Journal of Medical Genetics. 1979; 4: 51-71
Martinson, I.M., & Cohen, M.H. (in press). Themes identified in families with a child with cancer. Journal of Psychosocial Oncology.
- Fathering the chronically ill child.American Journal of Maternal-Child Nursing. 1981; 6: 124-138
- Parental response to the medical ambiguities of congenital deafness.Journal of Health and Social Behavior. 1986; 9: 299-309
- Delayed consequences of therapy for childhood cancer.CA-A Cancer Journal for Clinicians. 1985; 5: 271-286
- The measurement of uncertainty in illness.Nursing Research. 1981; 30: 258-263
- Health, uncertainty, and the action situation.in: Fiddle S. Uncertainty: Behavioral and social dimensions. Praeger, New York1980
- The structure of coping.Journal of Health and Social Behavior. 1978; 19: 2-21
- Psychological stress in families of children in a pediatric intensive care unit.Pediatric Clinics of North America. 1980; 27: 613-620
- Structural ambiguity and limits to coping.Journal of Human Stress. 1977; 3: 32-45
- Coping with poor prognosis in the pediatric intensive care unit.American Journal of Diseases of Childhood. 1979; 133: 1121-1125
- The burden of rheumatoid arthritis: Tolerating the uncertainty.Social Science and Medicine. 1975; 9: 97-104
Article info
Footnotes
☆Supported in part by the American Cancer Society (Minnesota and California Divisions), the St. Paul Foundation, and the Home Care Research Fund, through grants to Ida Martinson, RN, PhD, principal investigator.
Identification
Copyright
© 1988 Published by Elsevier Inc.
