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Abstract
Adrenoleukodystrophy has only recently been recognized as a disorder unique to children.
Its debilitating sequelae have a profound impact on the physical, psychosocial, and
cognitive development of children. Superimposed on coping with the crisis of illness
is the stressor of hospitalization, a common experience for children with adrenoleukodystrophy.
This article focuses on nursing's contribution to facilitating children's adaptation
to the stressors of a progressive disorder, adrenoleukodystrophy, and hospitalization.
Utilizing a developmental approach, the psychosocial needs of these children are addressed
in a format based on the nursing process.
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References
- Nelson textbook of pediatrics.12th ed. Saunders, Philadelphia1983
- Childhood and society.2nd ed. Norton, New York1963
- Psychosocial development of chronically ill children.in: Hobbs N. Perrin J. Issues in the care of children with chronic illness. Jossey-Bass, San Francisco1985
- Adrenoleukodystrophy (ALD): Clinical and CT features of a childhood variant.Neurology. 1983; 33: 1203-1205
- Bone marrow transplant in adrenoleukodystrophy.Neurology. 1983; 33: 154
- Adrenoleukodystrophy.Annals of Neurology. 1984; 16: 628-641
- Development of children with a chronic illness.in: Pediatric clinics of North America: Vol. 19: Chronic disease in children. Saunders, Philadelphia1984
- Emotional care of hospitalized children: An environmental approach.2nd ed. Lippincott, Philadelphia1980
- Latency.Aronson, New York1976
- The design of a diet restricted in saturated very long-chain fatty acids: Therapeutic application in adrenoleukodystrophy.American Journal of Clinical Nutrition. 1984; 40: 277-284
Bibliography
- Children in hospital: Making it happy … one neurosciences department.Nursing Times. 1987; 83: 40-42
- Dubusky M. Donbro R.H. The chronically ill child and his family. Charles C. Thomas, Springfield, IL1970
- Coping with chronic illness: Overcoming powerlessness.Davis, Philadelphia1983
- Coping with tragedy: Successfully facing the problem of a seriously ill child.Follett, Chicago1976
- Chronic childhood illnesses: Developmental issues.Pediatric Nursing. 1987; 13: 25-28
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© 1988 Published by Elsevier Inc.
