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Abstract
Ventilator-dependent children are surviving longer and increasing in number. This
qualitative study was undertaken to describe the impact of a ventilator-dependent
child on 10 families and to describe the management styles used by the parents. In
five families, the child remained hospitalized due to the disability while in the
other five the child primarily lived at home. Three major themes in managing were
elicited: barriers, resources, and parenting. Parents believed they should try to
normalize their child's experiences, that interactions with health care professionals
required negotiation and assertiveness, and that they needed some support person(s)
outside of the family.
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Article info
Footnotes
☆Funded in part by the Campus Research Board, University of Illinois at Chicago. The award was to D. Camilleri, “Measuring How Families Manage Illness and Disability.” Additional funding for this project was provided by the Division of Nursing, U.S. Department of Health and Human Services, H.H.S. #01 049-01, 2, awarded to D. Camilleri, “How Families Define and Manage Chronic Illness and Disability.” This was a subproposal of a Nursing Research Emphasis/Doctoral Program in Nursing Grant.
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Copyright
© 1989 Published by Elsevier Inc.
