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Article| Volume 7, ISSUE 4, P269-275, August 1992

Respite care services to caretakers of chronically Ill children in California

  • Patricia O'Connor
    Correspondence
    Address reprint requests to Patricia O'Connor, MN, RN, 19931 Lorne St, Canoga Park, CA 91306.
    Affiliations
    Nursing Department, UCLA Medical Center, Los Angeles, CA, USA

    Pediatric Rehabilitation, Valley Children's Hospital, Fresno, CA, USA

    UCLA Neuropsychiatric Institute and Hospital, Los Angeles, CA, USA
    Search for articles by this author
  • Sharon Vander Plaats
    Affiliations
    Nursing Department, UCLA Medical Center, Los Angeles, CA, USA

    Pediatric Rehabilitation, Valley Children's Hospital, Fresno, CA, USA

    UCLA Neuropsychiatric Institute and Hospital, Los Angeles, CA, USA
    Search for articles by this author
  • Cecily Lynn Betz
    Affiliations
    Nursing Department, UCLA Medical Center, Los Angeles, CA, USA

    Pediatric Rehabilitation, Valley Children's Hospital, Fresno, CA, USA

    UCLA Neuropsychiatric Institute and Hospital, Los Angeles, CA, USA
    Search for articles by this author
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      Abstract

      Caring for chronically ill and/or technology-dependent children at home can be emotionally, physically, psychologically, and financially exhausting for the caregiver. Caregivers require temporary relief from the burden of day-to-day care of these children. Respite care offers the opportunity for this relief. A study was conducted to survey the availability of respite care for chronically ill and technology-dependent children in California. Survey findings from 45 agencies indicated that 38% provided respite care for chronically ill and/or technology-dependent children. Fifty percent of agencies provided care for less than 10 chronically ill and/or technology-dependent children per year. Major problems associated with provision of respite services were inadequate reimbursement and insufficient request for services.
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      References

        • Apolloni A.H.
        • Triest G.
        Respite services in California: Status and recommendations for improvements.
        Mental Retardation. 1983; 21: 240-243
        • Child Health USA, '89
        U.S. Department of Health and Human Services. Bureau of Maternal and Child Health and Resources Development. HRS-M-CH8915.
        1989, October
        • Cohen S.
        Supporting families through respite care.
        Rehabilitation Literature. 1982; 43: 7-11
        • Cohen S.
        • Warren R.
        Respite care.
        Rehabilitation Literature. 1985; 46: 66-71
        • Cohen S.
        • Warren R.
        Respite care: Principles, programs and policies.
        Proed, Austin, TX1985
        • Goldberg A.
        • Fauvre E.
        • Vaughn C.
        • Snarski R.
        • Seleny F.
        Home Care for life-supported persons: An approach to program development.
        Journal of Pediatrics. 1984; 104: 785-795
        • Hagen J.
        Report of respite care services in Indiana.
        Northern Indiana Health Systems Agency Inc, 1980
        • Hobbs N.
        • Perrin J.
        • Ireys H.T.
        • Moynihan L.
        • Shayne M.
        Chronically ill children in America.
        Rehabilitation Literature. 1984; 45: 206-213
        • Horner M.
        • Rawlins P.
        • Giles K.
        How parents of children with chronic conditions perceive their own needs.
        Maternal Child Nursing. 1987; 12: 40-43
        • Human Services Research Institute
        Estimates of the incidence of conditions that can lead to developmental disabilities as by the state and of the prevalence of developmental disabilities as defined by the state and federal governments by county and statewide: California, 1990.
        Human Services Research Institute, Cambridge, MA1989, May
        • Kaufman J.
        • Hardy-Ribakow D.
        Home care: A model of a comprehensive approach for technology assisted chronically ill children.
        Journal of Pediatric Nursing. 1987; 4: 244-249
        • National Center for Health Statistics
        National Health Interview Survey, 1987.
        1989 (Unpublished data, analysis by Paul Newacheck)
        • Odnoha C.
        Respite program for families of chronically ill children.
        Caring. 1986; 5: 20-24
        • Slater M.
        Respite care: A national perspective.
        in: Salisbury C.L. Intagliata J. Respite care: Support to persons with developmental disabilities and their families. Paul H. Brooks, Baltimore, MD1986: 69-88
        • Steele N.
        • Harrison B.
        Technology assisted children: Assessing discharge preparation.
        Journal of Pediatric Nursing. 1986; 1: 150-158
        • Stullenberger B.
        • Norris J.
        • Edgil A.
        • Prosser M.J.
        Family adaptation to cystic fibrosis.
        Pediatric Nursing. 1987; 13: 29-31
      1. Title XX, U.S.C., Sec. 1471, et seq.

        • Upshur C.
        Respite care of mentally retarded and other disabled population: Program models and family needs.
        Mental Retardation. 1982; 20: 2-6
      2. U.S. 94th Congress, First session, 20 U.S.C. 1401, Section 3, Public Law 142. Education for All Handicapped Children Act of 1975.

      3. U.S. 99th Congress, Second session, 20 U.S.C. 1471, Section 101, Public Law 457.