Article| Volume 7, ISSUE 5, P304-311, October 1992

Family functioning when children have cystic fibrosis

  • Elspeth Henry Sawyer
    Address reprint requests to Elspeth Henry Sawyer, PhD, RN, Assistant Professor, Department of Family and Community, College of Nursing, The Ohio State University, 1585 Neil Ave, Columbus, OH 43210-1289.
    Department of Family and Community, College of Nursing, The Ohio State University, Columbus, OH, USA
    Search for articles by this author
      This paper is only available as a PDF. To read, Please Download here.


      The purpose of this study was to compare family functioning between 32 mothers with a child who had been diagnosed with cystic fibrosis (Group 1) and 32 mothers with a child who did not have cystic fibrosis (Group 2). The children's ages ranged from 4 months to 3 years. The mothers' perceptions of their family's functioning was measured by the Feetham Family Functioning Survey. There were no significant differences found between the groups on the total score of the Feetham Family Functioning Survey. Both groups of mothers reported that they were quite satisfied with their family functioning.
      To read this article in full you will need to make a payment

      Purchase one-time access:

      Academic & Personal: 24 hour online accessCorporate R&D Professionals: 24 hour online access
      One-time access price info
      • For academic or personal research use, select 'Academic and Personal'
      • For corporate R&D use, select 'Corporate R&D Professionals'


        • Boone D.B.
        • Hartman B.H.
        The benevolent over-reaction.
        Clinical Pediatrics. 1972; 11: 268-271
        • Burton L.
        The family life of sick children: A study of families coping with chronic disease.
        Routledge & Kegan Paul, Boston, MA1975
        • Busch-Rossnagel N.
        • Peters D.
        • Daly M.
        Mothers of vulnerable infants: More alike than different.
        Family Relations. 1984; 33: 149-154
        • Campbell D.T.
        • Stanley J.C.
        Experimental and quasi-experimental design for research.
        Rand McNally, Stokie, IL1966
        • Cowen L.
        • Corey M.
        • Keenan N.
        • Simmons R.
        • Arndt E.
        • Levison H.
        Family adaptation and psychosocial adjustment to cystic fibrosis in the preschool child.
        Social Science and Medicine. 1985; 20: 553-560
        • Deatrick J.A.
        • Knafl K.A.
        • Walsh M.
        The process of parenting a child with a disability: Normalization through accomodations.
        Journal of Advanced Nursing. 1988; 13: 15-21
        • Doershik C.F.
        • Boat T.F.
        Cystic fibrosis.
        in: Behrman R.E. Vaughan V.C. Nelson textbook of pediatrics. 13th ed. Saunders, Philadelphia, PA1987: 926-935
        • Dushenko T.
        Cystic fibrosis: A medical overview and critique of the psychological literature.
        Social Science and Medicine. 1981; 15 E: 43-56
        • Feetham S.L.
        Feetham Family Functioning Survey.
        1980 (Available from Suzanne L. Feetham Ph.D., F.A.A.N., Associate Director, Nursing Education and Research, Children's Hospital, National Medical Center, 111 Michigan Ave N.W., Washington DC 20010)
        • Feetham S.
        • Humenick S.
        The Feetham Family Functioning Survey.
        in: Humenick S. Analysis of current assessment strategies in the health care of young children and childbearing families. Appleton-Century-Crofts, Norwalk, CT1982
        • Gayton W.F.
        • Friedman S.B.
        Psychosocial aspects of cystic fibrosis.
        American Journal of Disabled Child. 1973; 126: 856-859
        • Gibson C.
        Perspective in parental coping with a chronically ill child: The case of cystic fibrosis.
        Issues in Comprehensive Pediatric Nursing. 1988; 11: 33-41
        • Holaday B.
        Challenges of rearing a chronically ill child.
        Nursing Clinics of North America. 1984; 19: 361-368
        • Knafl K.A.
        • Deatrick J.A.
        How families manage chronic conditions: An analysis of the concept of normalization.
        Research in Nursing and Health. 1986; 9: 215-222
        • Korn S.J.
        • Chess S.
        • Fernandez P.
        The impact of children's physical handicaps on marital quality and family interaction.
        in: Lerner R. Spanier M. Child influences on marital and family interaction. Academic, New York, NY1978
        • Leddet-Chevallier I.
        • Funkerburk S.
        The psychological effects of genetic disorders in children and their parents.
        in: Hollingsworth C.E. Coping with pediatric illness. Spectrum, New York, NY1983
        • Longo D.E.
        • Bond L.
        Families of the handicapped child: Research and practice.
        Family Relations. 1984; 33: 57-65
        • Lonsdale G.
        Family life with a handicapped child: The parents speak.
        Child: Care, Health and Development. 1978; 4: 95-120
        • Mattews L.W.
        • Drotar D.
        Cystic fibrosis: A challenging long-term chronic disease.
        Pediatric Clinics of North America. 1984; 31: 133-152
        • McCollum A.
        • Gibson L.E.
        Family adaptation to the child with cystic fibrosis.
        Journal of Pediatrics. 1970; 77: 571-578
        • McCubbin H.I.
        • McCubbin M.A.
        • Patterson J.M.
        • Cauble A.E.
        • Wilson L.R.
        • Warwick W.
        CHIP-Coping health inventory for parents: An assessment of parental coping patterns in the care of the chronically ill child.
        Journal of Marriage and the Family. 1983; : 359-370
        • McCubbin M.
        Nursing assessment of parental coping with cystic fibrosis.
        Western Journal of Nursing Research. 1984; 6: 407-422
        • McIntyre J.
        The structure-functional approach to family study.
        in: Nye F.I. Bernardo F.N. Emerging conceptual frameworks in family analysis. Praeger, New York, NY1981
        • Pless I.B.
        • Satterwhite B.
        A measure of family functioning and its application.
        Social Science Medicine. 1973; 7: 613-621
        • Porter L.W.
        Job attitudes in management.
        Journal of Applied Psychology. 1962; 46: 375-384
        • Roberts C.S.
        The relationship of family functioning to the habilitation of children born with myelodysplasia.
        in: Unpublished doctoral dissertation. Wayne State University, Detroit, MI1979
        • Roberts C.S.
        • Feetham S.L.
        Assessing family functioning across three areas of relationships.
        Nursing Research. 1982; 31: 231-235
        • Sawyer E.H.
        Mother-child interaction and family functioning: Children with cystic fibrosis.
        in: Unpublished doctoral dissertation. The Ohio State University, Columbus, OH1984
        • Shwachman H.
        Cystic fibrosis.
        in: Kendig E.L. Chernick V. Disorders of the respiratory tract in children. Saunders, Philadelphia, PA1983: 640-661
      1. Singer G.H.S. Irvin L.K. Support for caregiving families. Brookes, Baltimore, MD1989
        • Steinhauer P.D.
        Psychological aspects of chronic illness.
        Pediatric Clinics of North America. 1974; 21: 825-840
        • Tropauer A.
        • Franz M.N.
        • Dilgard V.W.
        Psychological aspects of the care of children with cystic fibrosis.
        in: Moss R.H. Coping with physical illness. Plenum, New York, NY1977
        • Van Os D.
        • Clark C.
        • Turner C.
        • Herbst J.
        Life stress and cystic fibrosis.
        Western Journal of Nursing Research. 1985; 7: 301-315
        • Venters M.
        Familial coping with chronic and severe childhood illness: The case of cystic fibrosis.
        Social Science Medicine. 1981; 15A: 289-297
        • Walker L.S.
        • Ford M.B.
        • Donald W.D.
        Cystic fibrosis and family stress: Effects of age and severity of illness.
        Pediatrics. 1987; 79: 239-246
        • Yarcheski A.
        Uncertainty in illness and the future.
        Western Journal of Nursing Research. 1988; 10: 401-413