Abstract
Increased knowledge about families with a malformed child affects nursing practice.
This study illuminates the experiences and psychosocial situation of 3 patients with
imperforate anus and their parents. A qualitative method has been used to analyze
the data. We found that the parents’ experiences of suffering were overwhelming and
that the 3 patients had been depressed during periods. The patients were not as open
as their parents; we need to devise better tools to explore and understand children’s
experiences. The children and their parents need special care and an opportunity to
express their anxieties.
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© 2003 Elsevier Inc. Published by Elsevier Inc. All rights reserved.
