Abstract
This study identifies what influences and characterizes family relations in families
of a child with asthma. Seventeen mothers of children aged between 6 and 16 years
participated in audio-taped in-depth interviews. The researchers were inspired by
grounded theory in data collection and data analysis. The core category that developed
was being governed by disease-engendered uncertainty. The category mothers’ availability
was seen in two dimensions. The first dimension, mothers’ being available for the
child with asthma, created two subcategories: 1. control and 2. tight bonds. The second
dimension, mothers’ being less available for other family members, also created two
subcategories: 3. being forsaken and 4. lack of understanding. Nursing implications
are discussed in relation to the findings.
To read this article in full you will need to make a payment
Purchase one-time access:
Academic & Personal: 24 hour online accessCorporate R&D Professionals: 24 hour online accessOne-time access price info
- For academic or personal research use, select 'Academic and Personal'
- For corporate R&D use, select 'Corporate R&D Professionals'
Subscribe:
Subscribe to Journal of Pediatric Nursing: Nursing Care of Children and FamiliesAlready a print subscriber? Claim online access
Already an online subscriber? Sign in
Register: Create an account
Institutional Access: Sign in to ScienceDirect
References
- Increase of asthma, allergic rhinitis and eczema in Swedish schoolchildren between 1979 and 1991.Clinical Experimental Allergy. 1995; 25: 815-819
- Pediatric asthma: Promoting best practice. Guide for managing asthma in children. University of Rochester, Rochester, NY1999
- Families with a ventilator-assisted child.Journal of Perinatology. 1994; 14: 48-55
- I and thou. Charles Scribner’s Sons, New York1970
- Stress-point preparation for parents of repeatedly hospitalized children with chronic conditions.Research in Nursing and Health. 1997; 20: 475-485
- Assessment of stressors in families with a child who has a chronic condition.American Journal of Maternal Child-Nursing (MCN). 1999; 24: 98-106
- The experience of illness.Research in the Sociology of Health Care. 1987; 6: 1-31
- Parental perceptions and support strategies in caring for a child with a chronic condition.Issues in Comprehensive Pediatric Nursing. 1993; 16: 109-121
- Being a parent of a child with asthma.Pediatric Nursing. 2001; 27: 365-373
- Comparison of dependent-care activities for well siblings of children with cystic fibrosis and well siblings in families without children with chronic illness.Issues in Comprehensive Pediatric Nursing. 1993; 16: 91-98
- Impact of a chronic illness in childhood.Issues in Comprehensive Pediatric Nursing. 1996; 19: 135-147
- The impact of children with chronic health problems on marriage.Journal of Family Nursing. 1999; 5: 10-32
- Family nursing. Theory and assessment. Appleton-Century-Crofts, Norwalk, CT1986
- Definitions, methodologies, and methods in family research.in: Gilgun J.F Daly K Handel G Qualitative methods in family research. SAGE Publications, Newbury Park, CA1992: 22-39
- In a different voice. Harvard University Press, Cambridge, MA1985
- Predictors of parental emotional adjustment to childhood cancer.Psycho-Oncology. 1997; 6: 115-128
- Asthma and family interaction.Archives of Disease in Childhood. 1987; 62: 258-263
- Family dysfunction in asthma.The Journal of Pediatrics. 1994; 125: 493-498
- Community in health nursing—theory and process. Harper and Row, New York1981
- Psychosocial-clinical perspectives. Family constellations in relation to relation to asthma.Journal of Asthma. 1985; 22: 99-114
- Catching the asthma.Journal of Pediatric-Nursing. 1998; 13: 356-366
- Gaining control. Parents’ experiences of accommodating children’s asthma.Clinical Nursing Research. 1996; 5: 294-308
- Inside the family. Harper and Row, New York1975
- What parents of children with asthma tell us.Journal of Pediatric Health Care. 2000; 14: 122-126
- Family response to childhood chronic illness. Description of management styles.Journal of Pediatric Nursing. 1996; 11: 315-326
- Family response to childhood chronic illness. A description of major defining themes.in: Funk S.G Tornquist E.M Champagne M.T Wiese R.A Key aspects of caring for the chronically ill Hospital and Home. Springer, New York1993: 290-303
- The impact of a chronic condition on the families of children with asthma.Pediatric Nursing. 1999; 25: 288-292
- Managing asthma.Pediatric Nursing. 1997; 23: 37-44
- Family research.Journal of Pediatric Nursing. 1995; 10: 383-384
- Secular trend in the occurrence of asthma among children and young adults.British Medical Journal. 1997; 315: 1795-1799
- Fathers.Pediatric Nursing. 1996; 22 (271): 243-246
- Past maternal experience of asthma, childhood morbidity, and the psychosocial impact of the disorder.Journal of Asthma. 1993; 30: 271-276
- Chronic illness and family life cycle.Journal of Advanced Nursing. 1996; 23: 786-791
- Developing a typology of family care.Journal of Advanced Nursing. 1995; 21: 256-265
- Socioemotional experiences of Korean families with asthmatic children.Journal of Family Nursing. 1998; 4: 291-308
- The mystery of hope in the philosophy of Gabriel Marcel 1888–1973. Hope and Homo Viator. The Edwin Mellen Press, Lewiston, NY1992
- Differences in emotional wellbeing and communication styles between mothers and fathers of pediatric cancer patients.Journal of Psychosocial Oncology. 1987; 5: 121-131
- Uncertainty in childhood illness: A synthesis of the parent and child literature. Scholarly Inquiry for Nursing Practice.An International Journal. 2000; 1: 299-317
- Basics of qualitative research. Grounded theory procedures and techniques. SAGE Publications, Inc, Newbury Park, CA1990
- Decreasing admissions for childhood asthma to Swedish county hospital.Acta Paediatrica. 1996; 85: 173-176
- Role of the family in the onset and outcome of childhood disorders.Journal of the American Academy of Child and Adolescent Psychiatry. 2000; 39: 1212-1219
- Decrease in hospitalization for treatment, despite an increase in prevalence of asthma.Journal of Allergy and Clinical Immunology. 1996; 85: 183-198
- Well-being of children with chronic illness. A population-based study in a Swedish primary care district.Acta Paediatrica. 1992; 81: 625-629
Article info
Identification
Copyright
© 2004 Elsevier Inc. Published by Elsevier Inc. All rights reserved.
