It is known that children with autism spectrum disorder (ASD) visit health care providers
(HCPs) more frequently than typically developing peers, and mothers experience barriers
in this process. The purpose of this interpretive phenomenological study was to gain
a better understanding of a mother's experiences of taking her child with ASD to the
HCP. Two themes related to the health care experience of the child surfaced from the
study. These themes included feelings that HCPs do not “get” the complexity of caring
for the child and marginalization of mothers by the HCP. The need for creation of
child-specific profiles emerged from this study.
Key words
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Article info
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Published online: July 11, 2011
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© 2012 Elsevier Inc. Published by Elsevier Inc. All rights reserved.
