Skip to Main Content

Login to your account

Show
Forgot password?
Don’t have an account?
Create a Free Account

If you don't remember your password, you can reset it by entering your email address and clicking the Reset Password button. You will then receive an email that contains a secure link for resetting your password

If the address matches a valid account an email will be sent to __email__ with instructions for resetting your password

Cancel
ADVERTISEMENT
SCROLL TO CONTINUE WITH CONTENT



Property Value
Status
Version
Ad File
Disable Ads Flag
Environment
Moat Init
Moat Ready
Contextual Ready
Contextual URL
Contextual Initial Segments
Contextual Used Segments
AdUnit
SubAdUnit
Custom Targeting
Ad Events
Invalid Ad Sizes
Advertisement
Journal of Pediatric Nursing
  • Submit
  • Log in
  • Register
  • Log in
    • Submit
    • Log in
  • Subscribe
  • Claim

Access provided by

Skip menu
  • Articles
    • Cover Image - Journal of Pediatric Nursing: Nursing Care of Children and Families, Volume 68, Issue
    • Latest

      • Articles in Press
      • Issues In Progress
      • Current issue
      • Past Issues
    • Popular Articles

      • Research Article

        Effects of digital game addiction on cardiovascular health behavior on secondary school students during the COVID-19 pandemic

          Çelik et al.
      • Society of Pediatric Nurses Department

        Immunizations – Nursing Interventions to Enhance Vaccination Rates

        • Ann M. Bowling
      • Research Article

        The long-term impact of the COVID-19 pandemic on children with ADHD in terms of participation, support, and barriers at home

          Kara et al.
    • Latest Articles

      • Research Article

        The long-term impact of the COVID-19 pandemic on children with ADHD in terms of participation, support, and barriers at home

          Kara et al.
      • Rapid Communication

        Children and adolescents continue to be exposed to early work in Brazil

          de Mattos Dziabas Júnior et al.
      • Research Article

        The efficacy of honey or olive oil on the severity of oral mucositis and pain compared to placebo (standard care) in children with leukemia receiving intensive chemotherapy: A randomized controlled trial (RCT)

          Badr et al.
  • Publish
    • For Authors

      • Submit Article
        External Link
      • Guide for Authors
      • Aims & Scope
      • Open Access Information
        External Link
      • Researcher Academy
        External Link
  • Topics
    • Collections

      • Covid-19
      • Instruments and Tools Article Collection
  • About
    • Society

      • SPN
        External Link
      • PENS
        External Link
      • Editorial Board
    • Journal Information

      • Aims & Scope
      • Permissions
      • Reprints
        External Link
      • Abstracting & Indexing
    • Access

      • Subscribe
      • Activate Online Access
  • Contact
    • Contact

      • Contact Us
      • Career Opportunities
        External Link
      • Advertise with Us
        External Link
      • Go to Product Catalog
        External Link
    • Follow Us

      • New Content Alerts
Advanced search
Advanced search

Please enter a term before submitting your search.

Ok
Research Article| Volume 27, ISSUE 5, P479-490, October 2012

Download started.

Ok
  • Purchase
    • Academic & Personal: 24 hour online access
    • Corporate R&D Professionals: 24 hour online access
  • Subscribe
  • Save
    • Add To Online LibraryPowered ByMendeley
    • Add To My Reading List
    • Export Citation
    • Create Citation Alert
  • Share
    Share on
    • Twitter
    • Facebook
    • Linked In
    • Sina Weibo
    • Email
  • more
    • Reprints
    • Request
  • Top

Support Needs and Preferences of Young Adolescents With Asthma and Allergies: “Just No One Really Seems to Understand”

  • Miriam Stewart, PhD
    Miriam Stewart
      Affiliations
      Faculty of Nursing & School of Public Health, University of Alberta, Edmonton, Alberta, Canada
      Search for articles by this author
    • Nicole Letourneau, PhD
      Nicole Letourneau
        Affiliations
        Canada Research Chair in Healthy Child Development, Faculty of Nursing, University of New Brunswick, Fredericton, NB, Canada
        Search for articles by this author
      • Jeffrey R. Masuda, PhD
        Jeffrey R. Masuda
          Affiliations
          Department of Environment and Geography, Clayton H. Riddell Faculty of Environment, Earth and Resources, University of Manitoba, Winnipeg, MB, Canada
          Search for articles by this author
        • Sharon Anderson, MEd, MSc
          Sharon Anderson
          Correspondence
          Corresponding author: Sharon Anderson, MEd, MSc.
          Contact
          Affiliations
          Social Support Research Program, University of Alberta, Edmonton, Alberta, Canada
          Search for articles by this author
        • Lisa Cicutto, PhD, RN
          Lisa Cicutto
            Affiliations
            Faculties of Nursing and Medicine, University of Toronto, Toronto, Ontario, Canada

            School of Graduate Studies, University of Colorado Denver, Toronto, Ontario, Canada
            Search for articles by this author
          • Shawna McGhan, MN, RN, CAE
            Shawna McGhan
              Affiliations
              Department of Medicine, Alberta Asthma Centre, University of Alberta, Alberta, Canada
              Search for articles by this author
            • Susan Watt, PhD
              Susan Watt
                Affiliations
                School of Social Work, McMaster University, Ontario, Canada
                Search for articles by this author
              Published:August 26, 2011DOI:https://doi.org/10.1016/j.pedn.2011.06.011
              Support Needs and Preferences of Young Adolescents With Asthma and Allergies: “Just No One Really Seems to Understand”
              Previous ArticleNurses' Role in the Prevention of Infant Mortality in 1884–1925: Health Disparities Then and Now
              Next ArticleIs Rural School-Aged Children's Quality of Life Affected by Their Responses to Asthma?
                  Advertisement
                  The objectives of this study were to identify support needs, support resources, and support barriers for young adolescents with asthma and allergies and to describe preferences for an accessible support intervention. Adolescents (N = 57) completed a survey questionnaire. Eight young adolescents, 10 parents, and 5 older adolescents participated in separate group interviews. Young adolescents' challenges included transition to self-care, balancing restrictions with safety, social isolation, and loneliness. Young teens recommended supportive networks facilitated by older adolescent peers and wanted to meet with other young adolescents living with asthma and allergies online and share information, advice, and encouragement with them.

                  Key words

                  • Social support
                  • Asthma
                  • Allergies
                  • Adolescents
                  • Support needs
                  • Support resources
                  To read this article in full you will need to make a payment

                  Purchase one-time access:

                  Academic & Personal: 24 hour online accessCorporate R&D Professionals: 24 hour online access
                  One-time access price info
                  • For academic or personal research use, select 'Academic and Personal'
                  • For corporate R&D use, select 'Corporate R&D Professionals'

                  Subscribe:

                  Subscribe to Journal of Pediatric Nursing: Nursing Care of Children and Families
                  Already a print subscriber? Claim online access
                  Already an online subscriber? Sign in
                  Register: Create an account
                  Institutional Access: Sign in to ScienceDirect

                  References

                    • Abrams L.S.
                    Sampling “hard to reach populations” in qualitative research: The case of incarcerated youth.
                    Qualitative Social Work. 2010; 9: 1-15
                    View in Article
                    • Google Scholar
                    • Anderson R.
                    Intuitive inquiry: An epistemology of the heart for scientific inquiry.
                    The Humanistic Psychologist. 2004; 32: 307-341
                    View in Article
                    • Scopus (52)
                    • Crossref
                    • Google Scholar
                    • Ahmed S.
                    • Beck B.
                    • Maurana C.A.
                    • Newton G.
                    Overcoming barriers to effective community-based participatory research in US medical schools.
                    Education for Health. 2004; 17: 141-151
                    View in Article
                    • Scopus (100)
                    • PubMed
                    • Crossref
                    • Google Scholar
                    • Ayala G.X.
                    • Miller D.
                    • Zagami E.
                    • Riddle C.
                    • Willis S.
                    • King D.
                    Asthma in middle schools: What students have to say about their asthma.
                    Journal of School Health. 2006; 76: 208-214
                    View in Article
                    • Scopus (49)
                    • PubMed
                    • Crossref
                    • Google Scholar
                    • Beazley H.
                    • Ennew J.
                    Participatory methods and approaches: Tackling the two tyrannies.
                    in: Desai V. Potter R. Doing Development Research. SAGE, London2006: 189-199
                    View in Article
                    • Google Scholar
                    • Bhinder S.
                    • Cicutto L.
                    • Abdel-Qadir H.M.
                    • Tarlo S.M.
                    Perception of asthma as a factor in career choice among young adults with asthma.
                    Canadian Respiratory Journal. 2009; 16: e69-e75
                    View in Article
                    • PubMed
                    • Google Scholar
                    • Björkstén B.
                    Unmet needs in the treatment of asthmatic children and adolescents.
                    Clinical Experimental Allergy. 2000; 30: 73-76
                    View in Article
                    • PubMed
                    • Crossref
                    • Google Scholar
                    • Boulet L.P.
                    • Dorval E.
                    • Labrecque M.
                    • Turgeon M.
                    • Montague T.
                    • Thivierge R.L.
                    Towards excellence in asthma management: Final report of an eight-year program aimed at reducing care gaps in asthma management in Quebec.
                    Canadian Respiratory Journal. 2008; 15: 302-310
                    View in Article
                    • PubMed
                    • Google Scholar
                    • Buston K.M.
                    • Wood S.F.
                    Non-compliance amongst adolescence with asthma: Listening to what they tell us about self-management.
                    Family Practice. 2000; 17: 134-138
                    View in Article
                    • Scopus (145)
                    • PubMed
                    • Crossref
                    • Google Scholar
                    • Centres for Disease Control and Prevention
                    Asthma in the US: Growing every year.
                    http://cdc.gov/VitalSigns/Asthma
                    Date: 2011
                    View in Article
                    • Google Scholar
                    • Chen E.
                    • Chim L.S.
                    • Strunk R.C.
                    • Miller G.E.
                    The role of the social environment in children and adolescents with asthma.
                    American Journal of Respiratory Critical Care Medicine. 2007; 176: 644-649
                    View in Article
                    • Scopus (100)
                    • PubMed
                    • Crossref
                    • Google Scholar
                    • Cicutto L.
                    • Murphy S.
                    • Coutts D.
                    • O'Rourke J.
                    • Lang G.
                    • Chapman C.
                    • Coates P.
                    Breaking the access barrier: Evaluating an asthma center's efforts to provide education to children with asthma in schools.
                    Chest. 2005; 128: 1928-1935
                    View in Article
                    • Scopus (73)
                    • PubMed
                    • Crossref
                    • Google Scholar
                    • Couriel J.
                    Asthma in adolescence.
                    Paediatric Respiratory Review. 2003; 4: 47-54
                    View in Article
                    • Scopus (55)
                    • PubMed
                    • Abstract
                    • Full Text
                    • Full Text PDF
                    • Google Scholar
                    • Cowie R.L.
                    • Cicutto L.
                    • Boulet L.P.
                    Asthma education and management programs in Canada.
                    Canadian Respiratory Journal. 2001; 8: 416-420
                    View in Article
                    • PubMed
                    • Google Scholar
                    • Creswell J.W.
                    Research design: Qualitative, quantitative, and mixed method approaches.
                    Sage, Thousand Oaks2005
                    View in Article
                    • Google Scholar
                    • Divertie V.
                    Strategies to promote medication adherence in children with asthma.
                    American Journal of Maternal/Child Nursing. 2002; 27: 10-18
                    View in Article
                    • Scopus (37)
                    • PubMed
                    • Crossref
                    • Google Scholar
                    • Gottlieb B.
                    Accomplishments and challenges in social support intervention research.
                    in: Stewart M. Chronic conditions and caregiving in Canada: Social support strategies. University of Toronto Press, Toronto2000: 294-310
                    View in Article
                    • Google Scholar
                    • Kapoor S.
                    • Roberts G.
                    • Bynoe Y.
                    • Gaughan M.
                    • Habibi P.
                    • Lack G.
                    Influence of a multidisciplinary paediatric allergy clinic on parental knowledge and rate of subsequent allergic reactions.
                    Allergy. 2004; 59: 185-191
                    View in Article
                    • Scopus (105)
                    • PubMed
                    • Crossref
                    • Google Scholar
                    • Kastner M.
                    • Harada L.
                    • Waserman S.
                    Gaps in anaphylaxis management at the level of physicians, patients, and the community: A systematic review of the literature.
                    Allergy. 2010; 65: 435-444
                    View in Article
                    • Scopus (108)
                    • PubMed
                    • Crossref
                    • Google Scholar
                    • Knight D.
                    Beliefs and self-care practices of adolescents with asthma.
                    Issues Compr Pediatric Nursing. 2005; 28: 71-81
                    View in Article
                    • Scopus (29)
                    • PubMed
                    • Crossref
                    • Google Scholar
                    • Kyngäs H.A.
                    Support network of adolescents with chronic disease: Adolescents' perspective.
                    Nursing and Health Sciences. 2004; 6: 287-293
                    View in Article
                    • Scopus (97)
                    • PubMed
                    • Crossref
                    • Google Scholar
                    • Letourneau N.
                    • Stewart M.
                    • Masuda J.R.
                    • Anderson S.
                    • Cicutto L.
                    • McGhan S.L.
                    • Watt S.
                    • (co-primary authors)
                    Impact of online support for youth with asthma and allergies: Pilot study.
                    Journal of Pediatric Nursing. 2010; (in press)
                    View in Article
                    • Google Scholar
                    • Marklund B.
                    • Ahlstedt S.
                    • Nordstrom G.
                    Health-related quality of life among adolescents with allergy-like condition—With emphasis on food hypersensitivity.
                    Health Quality of Life Outcomes. 2004; 2: 65
                    View in Article
                    • Scopus (99)
                    • PubMed
                    • Crossref
                    • Google Scholar
                    • McGhan S.L.
                    • MacDonald C.
                    • James D.E.
                    • Naidu P.
                    • Wong E.
                    • Sharpe H.
                    • et al.
                    Factors associated with poor asthma control in children aged five to 13 years.
                    Canadian Respiratory Journal. 2006; 13: 23-29
                    View in Article
                    • PubMed
                    • Google Scholar
                    • McNelis A.M.
                    • Musick B.
                    • Austin J.K.
                    • Larson P.
                    • Dunn D.W.
                    Psychosocial care needs of children with recent-onset asthma.
                    Journal for Specialists in Pediatric Nursing. 2007; 12: 3-12
                    View in Article
                    • Scopus (6)
                    • PubMed
                    • Crossref
                    • Google Scholar
                    • McQuaid E.L.
                    • Kopel S.J.
                    • Klein R.B.
                    • Fritz G.K.
                    Medication adherence in pediatric asthma: Reasoning, responsibility, and behavior.
                    Journal of Pediatric Psychology. 2003; 28: 323-333
                    View in Article
                    • Scopus (322)
                    • PubMed
                    • Crossref
                    • Google Scholar
                    • Mo F.
                    • Robinson C.
                    • Choi B.C.
                    • Li F.C.
                    Childhood asthma management and control. analysis of the student lung health survey database, Canada 1996.
                    International Journal of Adolescent Medicine and Health. 2004; 16: 29-40
                    View in Article
                    • Scopus (7)
                    • PubMed
                    • Crossref
                    • Google Scholar
                    • Muir T.A.
                    • Peterson L.
                    • Goldstein D.
                    Problem solving and diabetes regimen adherence by children and adolescents with IDDM in social pressure situations: A reflection of normal development.
                    Journal of Pediatric Psychology. 1997; 22: 541-561
                    View in Article
                    • Scopus (96)
                    • PubMed
                    • Crossref
                    • Google Scholar
                    • Muntner P.
                    • Sundre P.
                    • Uldry C.
                    Predictors of participation and attendance in a new asthma patient self management education program.
                    Chest. 2001; 120: 778-784
                    View in Article
                    • Scopus (28)
                    • PubMed
                    • Crossref
                    • Google Scholar
                    • Penza-Clyve S.M.
                    • Mansell M.S.
                    • McQuaid E.L.
                    Why don't children take their asthma medications? A qualitative analysis of children's perspectives on adherence.
                    Journal of Asthma. 2004; 41: 189-197
                    View in Article
                    • Scopus (87)
                    • PubMed
                    • Crossref
                    • Google Scholar
                    • Phillips D.
                    Postpositivistic science: Myths and realities.
                    in: Guba E. The paradigm dialogue. Sage, Newbury Park1990: 31-45
                    View in Article
                    • Google Scholar
                    • Primeau M.
                    • Kagan R.
                    • Joseph L.
                    • Lim H.
                    • Dufresne C.
                    • Duffy C.
                    • et al.
                    The psychologyogical burden of peanut allergy as perceived by adults with peanut allergy and the parents of peanut-allergic children.
                    Clin Exp Allergy. 2000; 30: 1135-1143
                    View in Article
                    • Scopus (333)
                    • PubMed
                    • Crossref
                    • Google Scholar
                    • Rhee H.
                    • Wenzel J.A.
                    • Steeves R.H.
                    Adolescents' psychosocial experiences living with asthma: A focus group study.
                    Journal Pediatric Health Care. 2007; 21: 99-107
                    View in Article
                    • Scopus (42)
                    • PubMed
                    • Abstract
                    • Full Text
                    • Full Text PDF
                    • Google Scholar
                    • Rhee H.
                    • Wyatt T.H.
                    • Wenzel J.A.
                    Adolescents with asthma: Learning needs and Internet use assessment.
                    Respiratory Care. 2006; 51: 1441-1449
                    View in Article
                    • PubMed
                    • Google Scholar
                    • Rich M.
                    • Lamola S.
                    • Gordon J.
                    • Chalfen R.
                    Video intervention/prevention assessment: A patient-centered methodology for understanding the adolescent illness experience.
                    Journal Adolescent Health. 2000; 27: 155-165
                    View in Article
                    • Scopus (91)
                    • PubMed
                    • Abstract
                    • Full Text
                    • Full Text PDF
                    • Google Scholar
                    • Rydstrom I.
                    • Hartman J.
                    • Segesten K.
                    Not letting the disease get the upper hand over life: Strategies of teens with asthma.
                    Scandinavian Journal of Caring Science. 2005; 19: 388-395
                    View in Article
                    • Scopus (21)
                    • PubMed
                    • Crossref
                    • Google Scholar
                    • Schulze S.
                    Views on the combination of quantitative and qualitative research approaches.
                    Progressio. 2003; 25: 8-20
                    View in Article
                    • Google Scholar
                    • Seung S.J.
                    • Mittmann N.
                    Urgent care costs of uncontrolled asthma in Canada.
                    Canadian Respiratory Journal. 2005; 12: 435-436
                    View in Article
                    • Scopus (21)
                    • PubMed
                    • Crossref
                    • Google Scholar
                    • Smith C.P.
                    Motivation and personality: Handbook of thematic content analysis.
                    Cambridge University Press, Cambridge2008
                    View in Article
                    • Google Scholar
                    • Statistics Canada
                    Persons with asthma, by age and sex 2010. Retrieved from:.
                    Statistics Canada, Ottawa2010
                    http://www40.statcan.ca/l01/cst01/health49a.htm.31
                    View in Article
                    • Google Scholar
                    • Stewart M.
                    Chronic conditions and caregiving in Canada: Social support strategies.
                    University of Toronto Press, Toronto2000
                    View in Article
                    • Google Scholar
                    • Stewart M.
                    • McGhan S.L.
                    • Masuda J.R.
                    • Letourneau N.
                    • Anderson S.
                    • Cicutto L.
                    • et al.
                    Professionals' preparation for supporting children and parents affected by asthma and allergies.
                    Journal of Asthma and Allergy Educators. 2010; 1: 223-231
                    View in Article
                    • Scopus (1)
                    • Crossref
                    • Google Scholar
                    • Stewart M.
                    • Makwarimba E.
                    • Barnfather A.
                    • Letourneau N.
                    • Neufeld A.
                    Researching reducing health disparities: Mixed methods approaches.
                    Social Science & Medicine. 2008; 66: 1406-1417
                    View in Article
                    • Scopus (60)
                    • PubMed
                    • Crossref
                    • Google Scholar
                    • Tashakkori A.
                    • Teddlie C.
                    Handbook of mixed methods in social and behavioural research.
                    Sage, Thousand Oaks2003
                    View in Article
                    • Google Scholar
                    • To T.
                    • Gershon G.
                    • Tassoudji M.
                    • Guan J.
                    • Wang J.
                    • Estrabillo E.
                    • et al.
                    The burden of asthma in Ontario: ICES investigative report; 2002. Retrieved from.
                    http://www.ices.on.ca/file/Burden_of_Asthma_Aug-07.pdf
                    Date: 2007
                    View in Article
                    • Google Scholar
                    • van Es S.M.
                    • Nagelkerke A.F.
                    • Colland V.T.
                    • Scholten R.J.
                    • Bouter L.M.
                    An intervention programme using the ASE-model aimed at enhancing adherence in adolescents with asthma.
                    Patient Education Counseling. 2001; 44: 193-203
                    View in Article
                    • Scopus (67)
                    • PubMed
                    • Abstract
                    • Full Text
                    • Full Text PDF
                    • Google Scholar
                    • International Telecommunications Union [ITU]
                    Yearbook of Statistics Chronological Time Series 2000–2009.
                    ITU, Geneva, Switzerland2010
                    View in Article
                    • Google Scholar
                    • Yeo M.
                    • Sawyer S.
                    Chronic illness and disability.
                    British Medical Journal. 2005; 330: 721-723
                    View in Article
                    • Scopus (50)
                    • PubMed
                    • Crossref
                    • Google Scholar

                  Article info

                  Publication history

                  Published online: August 26, 2011

                  Identification

                  DOI: https://doi.org/10.1016/j.pedn.2011.06.011

                  Copyright

                  © 2012 Elsevier Inc. Published by Elsevier Inc. All rights reserved.

                  ScienceDirect

                  Access this article on ScienceDirect

                  Related Articles

                    Hide CaptionDownloadSee figure in Article
                    Toggle Thumbstrip
                      • Download Hi-res image
                      • Download .PPT
                      • Home
                      • Articles & Issues
                      • Current Issue
                      • List of Issues
                      • Covid-19 Information
                      • For Authors
                      • Permissions
                      • Researcher Academy
                      • Journal Info
                      • About the Journal
                      • Abstracting/Indexing
                      • Activate Online Access
                      • Career Opportunities
                      • Contact Information
                      • Editorial Board
                      • Info for Advertisers
                      • Pricing
                      • Reprints
                      • New Content Alerts
                      • Subscribe
                      • More Periodicals
                      • Find a Periodical
                      • Go to Product Catalog

                      The content on this site is intended for healthcare professionals.



                      We use cookies to help provide and enhance our service and tailor content. To update your cookie settings, please visit the Cookie Preference Center for this site.
                      Copyright © 2023 Elsevier Inc. except certain content provided by third parties.

                      • Privacy Policy  
                      • Terms and Conditions  
                      • Accessibility  
                      • Help & Contact

                      RELX