Key words
Purchase one-time access:
Academic & Personal: 24 hour online accessCorporate R&D Professionals: 24 hour online accessOne-time access price info
- For academic or personal research use, select 'Academic and Personal'
- For corporate R&D use, select 'Corporate R&D Professionals'
Subscribe:
Subscribe to Journal of Pediatric Nursing: Nursing Care of Children and FamiliesReferences
- Outcome of transitioning pediatric patients with sickle cell disease to adult programs.Blood. 2004; 104: 3743
Betz, C. L. (2013). Health care transition for adolescents with special healthcare needs: Where is nursing? Nursing Outlook, 61, 258–265. http://dx.doi.org/10.1016/j.outlook.2012.08.009S0029-6554(12)00238-2 [pii].
Betz, C. L., Lobo, M. L., Nehring, W. M., & Bui, K. (2013). Voices not heard: A systematic review of adolescents' and emerging adults' perspectives of health care transition. Nursing Outlook, 61, 311–336. http://dx.doi.org/10.1016/j.outlook.2013.01.008S0029-655400106-1 [pii].
- Age-related treatment patterns in sickle cell disease patients and the associated sickle cell complications and healthcare costs.Pediatric Blood & Cancer. 2013; https://doi.org/10.1002/pbc.24459
- Ecology of human development.Harvard University Press, Cambridge, MA1979
- Making human beings human: Bioecological perspectives on human development.Sage, Thousand Oaks, CA2005
Brousseau, D. C., Owens, P. L., Mosso, A. L., Panepinto, J. A., & Steiner, C. A. (2010). Acute care utilization and rehospitalizations for sickle cell disease. Journal of the American Medical Association, 303, 1288–1294. http://dx.doi.org/303/13/1288 [pii]10.1001/jama.2010.378
Cooley, W. C., & Sagerman, P. J. (2011). Supporting the health care transition from adolescence to adulthood in the medical home. Pediatrics, 128, 182–200. http://dx.doi.org/10.1542/peds.2011-0969peds.2011-0969 [pii].
- Qualitative inquiry and research design: Choosing among five approaches.3rd edn ed. SAGE Publications, Inc., Thousand Oaks, CA, USA2012
- Integrating interactive Web-based technology to assess adherence and clinical outcomes in pediatric sickle cell disease.Anemia. 2012; 2012: 492428https://doi.org/10.1155/2012/492428
- The mediating effects of family functioning on psychosocial outcomes in healthy siblings of children with sickle cell disease.Pediatric Blood & Cancer. 2011; 57: 1055-1061https://doi.org/10.1002/pbc.22933
Graff, J. C., Hankins, J., Graves, R. J., Robitaille, K. Y., Roberts, R., Cejda, K.,. Porter, J. S. (2012). Exploring family communication about sickle cell disease in adolescence. Journal of Pediatric Oncology Nursing, 29, 323–336. http://dx.doi.org/10.1177/10434542124560861043454212456086 [pii].
- Exploring parent–sibling communication in families of children with sickle cell disease.Issues in Comprehensive Pediatric Nursing. 2010; 33: 101-123https://doi.org/10.3109/01460861003663987
- Qualitative methods for health research (2nd).edn ed. SAGE Publications, Inc., Thousand Oaks, CA, USA2009
Hankins, J. S., Osarogiagbon, R., Adams-Graves, P., McHugh, L., Steele, V., Smeltzer, M. P., & Anderson, S. M. (2012). A transition pilot program for adolescents with sickle cell disease. Journal of Pediatric Health Care. http://dx.doi.org/S0891-5245(12)00128-9 [pii]10.1016/j.pedhc.2012.06.004
Hassell, K. L. (2010). Population estimates of sickle cell disease in the u.S. American Journal of Preventive Medicine, 38(4 Suppl), S512-S521. http://dx.doi.org/S0749-3797(09)00960-X [pii]10.1016/j.amepre.2009.12.022.
- Transitioning adolescents with sickle cell disease to adult-centered care.Pediatric Nursing. 1999; 25: 479-488
- When children with sickle-cell disease become adults: Lack of outpatient care leads to increased use of the emergency department.American Journal of Hematology. 2011; 86: 863-865https://doi.org/10.1002/ajh.22106
Huang, J. S., Gottschalk, M., Pian, M., Dillon, L., Barajas, D., & Bartholomew, L. K. (2011). Transition to adult care: Systematic assessment of adolescents with chronic illnesses and their medical teams. Journal of Pediatrics, 159, 994–998 e992. http://dx.doi.org/10.1016/j.jpeds.2011.05.038S0022-3476(11)00516-6 [pii].
- Parents as transition experts? Qualitative findings from a pilot parent-led peer support group.Child: Care, Health and Development. 2011; 37: 833-840https://doi.org/10.1111/j.1365-2214.2011.01294.x
- Focus groups: A practical guide for applied research.3rd edn ed. SAGE Publications, Inc., Thousand Oaks, CA, USA2000
Lee, L., Askew, R., Walker, J., Stephen, J., & Robertson-Artwork, A. (2012). Adults with sickle cell disease: An interdisciplinary approach to home care and self-care management with a case study. Home Healthcare Nurse, 30, 172–183; [quiz 183–175]. http://dx.doi.org/10.1097/NHH.0b013e318246d83d00004045-201203000-00007 [pii].
- Advancing healthcare transitions in the medical home: Tools for providers, families and adolescents with special healthcare needs.Current Opinion in Pediatrics. 2013; https://doi.org/10.1097/MOP.0b013e3283623d2f
- Transition of patients with sickle cell disease from pediatric to adult care: Assessing patient readiness.Pediatric Blood & Cancer. 2009; 52: 838-841https://doi.org/10.1002/pbc.21974
- When to use focus groups and why.in: Morgan D.L. Successful focus groups: Advancing the state of the art. Sage, Newbury Park, CA1993: 3-19
- Social competence of siblings of children with sickle cell anemia.Journal of Pediatric Psychology. 1995; 20: 165-172
- Qualitiative research and evaluation methods.Sage Publications, Thousand Oaks2002
Peter, N. G., Forke, C. M., Ginsburg, K. R., & Schwarz, D. F. (2009). Transition from pediatric to adult care: Internists' perspectives. Pediatrics, 123, 417–423. http://dx.doi.org/10.1542/peds.2008-0740123/2/417 [pii].
- Parents' communication with siblings of children affected by an inherited genetic condition.Journal of Genetic Counseling. 2011; 20: 374-383https://doi.org/10.1007/s10897-011-9361-1
Quinn, C. T., Rogers, Z. R., McCavit, T. L., & Buchanan, G. R. (2010). Improved survival of children and adolescents with sickle cell disease. Blood, 115, 3447–3452. http://dx.doi.org/blood-2009-07-233700 [pii]10.1182/blood-2009-07-233700.
Reiss, J. G., Gibson, R. W., & Walker, L. R. (2005). Health care transition: Youth, family, and provider perspectives. Pediatrics, 115, 112–120. http://dx.doi.org/115/1/112 [pii]10.1542/peds.2004-1321.
- The coding manual for qualitative researchers.SAGE Publications, Inc., Thousand Oaks, CA, USA2009
Sparud-Lundin, C., Ohrn, I., & Danielson, E. (2010). Redefining relationships and identity in young adults with type 1 diabetes. Journal of Advanced Nursing, 66, 128–138. http://dx.doi.org/10.1111/j.1365-2648.2009.05166.xJAN5166 [pii].
- Focus groups: Theory and practice.2nd ed. Sage, Thousand Oaks2007
- Providers' perspectives and beliefs regarding transition to adult care for adolescents with sickle cell disease.Journal of Health Care for the Poor and Underserved. 2004; 15: 443-461
- Transition to adult care for adolescents with sickle cell disease: Results of a national survey.International Journal of Adolescent Medicine and Health. 2004; 16: 47-64
- Transfer as a component of the transition of adolescents with sickle cell disease to adult care: Adolescent, adult, and parent perspectives.Journal of Adolescent Health. 1994; 15: 558-565
- Adolescent views on transition in diabetes and nephrology.European Journal of Pediatrics. 2013; 172: 293-304https://doi.org/10.1007/s00431-012-1725-5
- Transition from pediatric to adult care in sickle cell disease: Establishing evidence-based practice and directions for research.American Journal of Hematology. 2011; 86: 116-120https://doi.org/10.1002/ajh.21880
Tuchman, L. K., Slap, G. B., & Britto, M. T. (2008). Transition to adult care: Experiences and expectations of adolescents with a chronic illness. Child: Care, Health and Development, 34, 557–563. http://dx.doi.org/CCH844 [pii]10.1111/j.1365-2214.2008.00844.x.
- Crossing the transition chasm: Experiences and recommendations for improving transitional care of young adults, parents and providers.Child: Care, Health and Development. 2011; 37: 821-832https://doi.org/10.1111/j.1365-2214.2011.01261.x
Vollmer, W. M., Feldstein, A., Smith, D. H., Dubanoski, J. P., Waterbury, A., Schneider, J. L., Rand, C. (2011). Use of health information technology to improve medication adherence. American Journal of Managed Care, 17(12 Spec No.), SP79–87. http://dx.doi.org/53474 [pii].
Wang, C. J., Kavanagh, P. L., Little, A. A., Holliman, J. B., & Sprinz, P. G. (2011). Quality-of-care indicators for children with sickle cell disease. Pediatrics, 128, 484–493. http://dx.doi.org/10.1542/peds.2010-1791peds.2010-1791 [pii].
Wojciechowski, E. A., Hurtig, A., & Dorn, L. (2002). A natural history study of adolescents and young adults with sickle cell disease as they transfer to adult care: A need for case management services. Journal of Pediatric Nursing, 17, 18–27. http://dx.doi.org/S0882596302311047 [pii].