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Research Article| Volume 30, ISSUE 1, P143-159, January 2015

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Involving Parents in Managing Their Child's Long-Term Condition—A Concept Synthesis of Family-Centered Care and Partnership-in-Care

  • Joanna Smith, PhD, MSc, BSc, RSCN, RGN
    Joanna Smith
    Correspondence
    Corresponding author: Joanna Smith, PhD, MSc, BSc, RSCN, RGN.
    Contact
    Affiliations
    School of Human & Health Sciences, Division of Maternal and Child Health, University of Huddersfield, Huddersfield, UK
    Search for articles by this author
  • Veronica Swallow, PhD, MMedSc, BSc, RSCN, RGN
    Veronica Swallow
      Affiliations
      School of Nursing, Midwifery and Social Work, Jean McFarlane Building, University of Manchetser, Manchester, UK
      Search for articles by this author
    • Imelda Coyne, PhD, MA, BSc, HDip N, RSCN, RGN, RNT, FEANS
      Imelda Coyne
        Affiliations
        School of Nursing & Midwifery, Trinity College Dublin, Dublin 2, Ireland
        Search for articles by this author
      Published:December 03, 2014DOI:https://doi.org/10.1016/j.pedn.2014.10.014
      Involving Parents in Managing Their Child's Long-Term Condition—A Concept Synthesis of Family-Centered Care and Partnership-in-Care
      Previous ArticleWhat Impact Do Hospital and Unit-Based Rules Have Upon Patient and Family-Centered Care in the Pediatric Intensive Care Unit?
      Next ArticleIdentifying Factors Related to Family Management During the Coping Process of Families with Childhood Chronic Conditions: A Multi-Site Study
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          Background

          Fostering effective engagement, collaboration and empowerment are central to supporting parents caring for children with long-term conditions.

          Methods

          A concept synthesis was undertaken to identify the shared antecedents and attributes underpinning models of family-centered care and partnership-in-care.

          Results

          Thirty studies were reviewed; antecedents of models related to unclear roles, entrenched professional practices, and lack of guidelines supporting their implementation; with central attributes being building trust, listening to parent concerns and valuing parents' knowledge of their child.

          Conclusion

          The key attributes are outlined in a practical framework of involvement which may promote parent–professional collaboration for families of children with long-term conditions.

          Key words

          • Family-centered care
          • Collaboration
          • Partnership
          • Parent
          • Child
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          Article info

          Publication history

          Published online: December 03, 2014
          Accepted: October 19, 2014
          Received in revised form: October 16, 2014
          Received: June 8, 2014

          Footnotes

          1This review has not received commercial funding.

          Identification

          DOI: https://doi.org/10.1016/j.pedn.2014.10.014

          Copyright

          © 2015 Elsevier Inc. Published by Elsevier Inc. All rights reserved.

          ScienceDirect

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