Highlights
- •AYAs report transition processes are deficient in meeting the Got Transition® Six Core Elements.
- •Healthcare providers must design system processes to provide resources necessary for transition.
- •Research identifying family processes to support AYA assumption of responsibility is needed.
- •Several evidence-based recommendations are ready for implementation as confirmed by findings.
Abstract
Problem
Improvements in chronic disease management has led to increasing numbers of youth
transitioning to adult healthcare. Poor transition can lead to high risks of morbidity
and mortality. Understanding adolescents and young adults (AYA) perspectives on transition
is essential to developing effective transition preparation. The aim of this metasynthesis
was to synthesize qualitative studies assessing the experiences and expectations of
transition to adult healthcare settings in AYAs with chronic diseases to update work
completed in a prior metasynthesis by
Fegran et al., 2014
.- Fegran L.
- Hall E.O.C.
- Uhrenfeldt L.
- Aagaard H.
- Ludvigsen M.S.
Adolescents’ and young adults’ transition experiences when transferring from paediatric
to adult care: A qualitative metasynthesis.
International Journal of Nursing Studies. 2014; 51: 123-135https://doi.org/10.1016/j.ijnurstu.2013.02.001
Eligibility criteria
A search of PubMed, Medline, PsycINFO, and CINAHL was conducted to gather articles
published after February 2011 through June 2019.
Sample
Of 889 articles screened, a total of 33 articles were included in the final analysis.
Results
Seven main themes were found: developing transition readiness, conceiving expectations
based upon pediatric healthcare, transitioning leads to an evolving parent role, transitioning
leads to an evolving youth role, identifying barriers, lacking transition readiness,
and recommendations for improvements.
Conclusions
Findings of this metasynthesis reaffirmed previous findings. AYAs continue to report
deficiencies in meeting the Got Transition® Six Core Elements. The findings highlighted
the need to create AYA-centered transition preparation which incorporate support for
parents.
Implications
Improvements in transition preparation interventions need to address deficiencies
in meeting the Got Transition® Six Core Elements. More research is needed to identify
and address barriers implementing the transition process.
Keywords
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Article info
Publication history
Published online: September 20, 2020
Accepted:
August 31,
2020
Received in revised form:
August 31,
2020
Received:
April 14,
2020
Identification
Copyright
© 2020 Elsevier Inc. All rights reserved.
