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Research Article| Volume 66, e152-e159, September 2022

An educational design and development project for pediatric heart transplant recipients and their families

Published:April 22, 2022DOI:https://doi.org/10.1016/j.pedn.2022.04.009

      Abstract

      Purpose

      The purpose of this project is to systematically derive and develop educational content for children who have undergone heart transplants and their families to improve the families' and caregivers' ability to manage child health in South Korea.

      Design and methods

      This project developed educational content through the first three steps: “Analysis,” “Design,” and “Development” of the five steps outlined in the ADDIE (Analysis, Design, Development, Implementation, and Evaluation) model. The educational contents were derived from an analysis of six literature reviews and six studies, seven websites, and interviews with six caregivers of children who have undergone a heart transplant. Based on these analyses, educational items were designed. When a draft of the education contents was developed, the content validity was validated by ten experts.

      Results

      Educational items were designed in nine major categories and 40 sub-categories. All contents were validated with a content validity index of at least 0.8 or higher and included in the education content for pediatric heart transplant families, with recommendations for further modification based on expert advice.

      Practice implications

      This project is meaningful in that it has developed health management education contents suitable for the situation in South Korea through analyzing previous studies and educational contents of domestic and international medical centers as well as an in-depth interview with caregivers.

      Keywords

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      References

        • Alba A.
        • Bain E.
        • Ng N.
        • Stein M.
        • O’Brien K.
        • Foroutan F.
        • Ross H.
        Complications after heart transplantation: Hope for the best, but prepare for the worst.
        International Journal of Transplantation Research and Medicine. 2016; 2
        • Almgren M.
        • Lennerling A.
        • Lundmark M.
        • Forsberg A.
        The meaning of being in uncertainty after heart transplantation - an unrevealed source to distress.
        European Journal of Cardiovascular Nursing. 2017; 16: 167-174
        • D'Addese L.
        • Joong A.
        • Burch M.
        • Pahl E.
        Pediatric heart transplantation in the current era.
        Current Opinion in Pediatrics. 2019; 31: 583-591
        • Green A.
        • Meaux J.
        • Huett A.
        • Ainley K.
        Constantly responsible, constantly worried, constantly blessed: Parenting after pediatric heart transplant.
        Progress in Transplantation. 2009; 19: 122-127
        • Green A.
        • Meaux J.
        • Huett A.
        • Ainley K.
        “It has its ups and downs”: Adolescents’ quality of life after heart transplantation.
        Progress in Transplantation. 2011; 21: 115-120
        • Green A.
        • Ray T.
        • Gance-Cleveland B.
        Attention to child development: A key piece of family-centered care for cardiac transplant recipients.
        Journal for Specialists in Pediatric Nursing. 2006; 11: 143
        • Hsieh H.-F.
        • Shannon S.E.
        Three approaches to qualitative content analysis.
        Qualitative Health Research. 2005; 15: 1277-1288
        • Hwang Y.
        • Yi M.
        The lived experience of patients with heart transplantation: A phenomenological study.
        Journal of Korean Academy of Nursing. 2017; 47: 110-120
        • Jeong E.
        • Kwon I.S.
        Effect of Caregiver’s role improvement program on the uncertainty, stress, and role performance of caregivers with hospitalized children.
        Child Health Nursing Research. 2017; 23: 70-80
        • Jhang W.K.
        Analysis of heart rate variability after heart transplantation in pediatric recipients.
        University of Ulsan, Ulsan2012 ([dissertation])
        • Kim M.
        • Lee J.
        • Kim S.
        Service needs for parenting a child with Cancer: Perspectives of the parents.
        Health and Social Welfare Review. 2016; 36: 544-580
      1. KONOS (2019). https://www.konos.go.kr/ Retrieved from https://www.konos.go.kr/konosis/common/bizlogic.jsp.

        • Lawrence K.S.
        • Stilley C.S.
        • Olshansky E.
        • Bender A.
        • Webber S.A.
        Further exploration: Maturity and adherence in adolescent and young adult heart transplant recipients.
        Progress in Transplantation. 2008; 18: 50-54
        • Lawrence K.S.
        • Stilley C.S.
        • Pollock J.A.
        • Webber S.A.
        • Quivers E.S.
        A family-centered educational program to promote Independence in pediatric heart transplant recipients.
        Progress in Transplantation. 2011; 21: 61-66
        • Lee D.W.
        • Kwon I.S.
        • Jeong E.
        Development and effect of a child health management program based on cooperative learning for mothers of preschool children.
        Child Health Nurs Res. 2017; 23: 48-60
        • Lee S.J.
        • Chung Y.I.
        • Moon D.H.
        • Kang S.H.
        A study on health education behavior of parent for preventive health care of kindergarten children.
        Korean Journal of Health Education and Promotion. 2002; 19: 109-132
        • Lerret S.M.
        • Johnson N.L.
        • Haglund K.A.
        Parents’ perspectives on caring for children after solid organ transplant.
        Journal for Specialists in Pediatric Nursing. 2017; 22e12178
        • Lerret S.M.
        • Weiss M.E.
        • Stendahl G.L.
        • Chapman S.
        • Menendez J.
        • Williams L.
        • Simpson P.
        Pediatric solid organ transplant recipients: Transition to home and chronic illness care.
        Pediatric Transplantation. 2015; 19: 118-129
        • Luikart H.
        Pediatric cardiac transplantation: Management issues.
        Journal of Pediatric Nursing. 2001; 16: 320-331
        • Lyons M.
        Immunosuppressive therapy after cardiac transplantation: Teaching pediatric patients and their families.
        Critical Care Nurse. 1993; 13: 39-45
        • Mohney K.
        Learning to live again: The role of education in heart transplant recipients.
        Critical Care Nursing Quarterly. 2018; 41: 389-393
        • Molenda M.
        In search of the elusive ADDIE model.
        Performance Improvement. 2003; 42: 34-37
        • Park E.S.
        • Lee K.H.
        • Oh W.O.
        • Im Y.J.
        • Cho E.J.
        Parenting experience of parents with chronically ill children.
        Child Health Nursing Research. 2015; 21: 272-284
        • Polit D.F.
        • Beck C.T.
        The content validity index: Are you sure you know what’s being reported? Critique and recommendations.
        Research in Nursing & Health. 2006; 29: 489-497
        • Sehgal S.
        • Shea E.
        • Kelm L.
        • Kamat D.
        Heart transplant in children: What a primary care provider needs to know.
        Pediatric Annals. 2018; 47: e172-e178
        • Shah K.S.
        • Kittleson M.M.
        • Kobashigawa J.A.
        Updates on heart transplantation.
        Current Heart Failure Reports. 2019; 16: 150-156
        • Thrush P.T.
        • Hoffman T.M.
        Pediatric heart transplantation—Indications and outcomes in the current era.
        Journal of Thoracic Disease. 2014; 6: 1080
        • Weiss M.E.
        • Sawin K.J.
        • Gralton K.
        • Johnson N.
        • Klingbeil C.
        • Lerret S.
        • Schiffman R.
        Discharge teaching, readiness for discharge, and post-discharge outcomes in parents of hospitalized children.
        Journal of Pediatric Nursing. 2017; 34: 58-64
        • Wright L.
        • Pape D.
        • Ross K.
        • Campbell M.
        • Bowman K.
        Approaching end-of-life care in organ transplantation: The impact of transplant patients’ death and dying.
        Progress in Transplantation. 2007; 17: 57-61
        • Yoo H.J.
        Development and application of smartphone app-based self-care health diary for heart transplant recipients.
        ([dissertation]) Seoul National University, 2019