Highlights
- •Children with RD and parents manage long-term injection-based treatment at home.
- •Nurses provide injection training at short-term admissions or outpatient clinics.
- •Nurses perceive their educational role as important, but lack pedagogical competence.
- •Reflection in clinical practice may promote nurses' professional development.
- •Pediatric specialist nurses appear to be well positioned to provide patient education.
Abstract
Purpose
To explore nurses' perceptions of their educational role, pedagogical competence,
and practice in teaching children with rheumatic diseases and their parents to manage
subcutaneous injections at home.
Design and methods
In this qualitative study, we used thematic analysis to analyze data from three focus
groups with 14 nurses responsible for patient education at one pediatric ward and
two outpatient clinics.
Results
We identified three main themes capturing nurses' perceptions of their educational
role: myriad expectations, awareness of own competence, and facilitation and prioritization of patient education. Nurses perceived patient education as an expected but challenging duty of their
work. They described a lack of pedagogical competence, insecurity in managing parents'
and children's fears and worries, and limited organizational structures guiding their
educational role. Nurses who worked in outpatient clinics felt freer to individualize
education compared to ward nurses.
Conclusions
Nurses perceive their educational role as significant in enabling children and parents
to manage subcutaneous injections at home; however, they require pedagogical competence
integrated with daily practice to provide high-quality care. Short-term admissions
require a different organization of patient education than before.
Practical implications
Nurses need increased training in communication and management of children's pain
and fear during needle injections. Competence development should include opportunities
for reflection and guidance in clinical practice. Pediatric specialist nurses at outpatient
clinics seem to have better competence to provide individual patient education for
these families. The potential advantage of web-based solutions for nurses' patient
education is a promising avenue for future research.
Keywords
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Article info
Publication history
Published online: April 28, 2022
Accepted:
April 14,
2022
Received in revised form:
April 5,
2022
Received:
October 19,
2021
Identification
Copyright
© 2022 Published by Elsevier Inc.
