Highlights
- •Color Me Healthy is a child-centric, game-based symptom assessment app.
- •Children with cancer reported symptoms and daily experiences using the app.
- •Children’s self-reported data can support a person-centered approach to care.
- •Research is needed to evaluate the efficacy of mHealth apps to improve symptoms.
Abstract
Purpose
Mobile health (mHealth) resources, including apps, are emerging as resources to support
children in tracking symptoms and other health-related data. The purpose of this study
was to describe symptoms and daily experiences reported by elementary school-age children
receiving treatment for cancer using the newly developed Color Me Healthy app.
Design and methods
Participants in this descriptive study were children 6–12 years of age, who were receiving
cancer treatment at a free-standing children’s hospital in the Intermountain West
of the United States. Children were requested to use the app for at least five days
between clinical visits. Children’s app-reported data were extracted from individual
user accounts for analysis. Quantitative data were summarized descriptively. Qualitative
data were summarized using qualitative content analysis.
Results
Nineteen children (6–12 years; median 8 years; 7 females) completed 107 days of app
use. All children reported symptoms at least once, and 14 reported at least one day
with a symptom of moderate or greater severity. Daily experiences reported through
the app reflected children’s engagement in usual childhood experiences while also
describing life with cancer, including symptoms.
Conclusions
Elementary school-age children are capable of self-reporting symptoms using a symptom
reporting app, providing preliminary evidence for the potential benefits and clinical
relevance of mHealth resources to support health outcomes within this population.
Practice implications
Clinicians should anticipate and support ongoing symptom management needs between
clinical visits. Children’s self-reported data can promote a person-centered approach
to symptom assessment and management.
Keywords
To read this article in full you will need to make a payment
Purchase one-time access:
Academic & Personal: 24 hour online accessCorporate R&D Professionals: 24 hour online accessOne-time access price info
- For academic or personal research use, select 'Academic and Personal'
- For corporate R&D use, select 'Corporate R&D Professionals'
Subscribe:
Subscribe to Journal of Pediatric Nursing: Nursing Care of Children and FamiliesAlready a print subscriber? Claim online access
Already an online subscriber? Sign in
Register: Create an account
Institutional Access: Sign in to ScienceDirect
References
- Design box case study: Facilitating interdisciplinary collaboration and participatory design in game development.in: Extended abstracts publication of the annual symposium on computer-human interaction in play. 2017
- Designing inside the box or pitching practices in industry and education.DiGRA Proceedings. 2014;
Cavanagh, S. (2015, September 24, Students’ tablet, smartphone usage climbs, with strong appetite for apps. EdWeek Market Brief https://marketbrief.edweek.org/marketplace-k-12/student_tablet_smartphone_usage_climbs_with_strong_appetite_for_apps/
- Children’s drawings with narratives in the hospital setting: Insights into the patient experience.Hospital Pediatrics. 2019; 9: 495-500
- Introduction to cancer symptom science.in: Cleeland C.S. Fisch M.J. Dunn A.J. Cancer symptom science: Measurement, mechanisms, and management. Cambridge University Press, 2011: 1-3
- Symptom measurement by patient report.in: Cleeland C.S. Fisch M.J. Dunn A.J. Cancer symptom science: Measurement, mechanisms, and management. Cambridge University Press, 2011: 268-284
- The measurement of symptoms in young children with cancer: The validation of the Memorial Symptom Assessment Scale in children aged 7–12.Journal of Pain and Symptom Management. 2002; 23: 10-16
- Introducing JSON.https://www.json.org/json-en.htmlDate: 2022
- Quality of life and pain experienced by children and adolescents with cancer at home following discharge from the hospital.Journal of Pediatric Hematology/Oncology. 2020; 42: 46-52
- The qualitative content analysis process.Journal of Advanced Nursing. 2008; 62: 107-115
- Using a heuristic app to improve symptom self-management in adolescents and young adults with cancer.Journal of Adolescent and Young Adult Oncology. 2019; 8: 131-141
- Pain buddy: A novel use of m-health in the management of children’s cancer pain.Computers in Biology and Medicne. 2016; 76: 202-214
- Nurse case manager: Measurement of care coordination activities and quality and resource use outcomes when caring for the complex patient with hematologic cancer.Clinical Journal of Oncology Nursing. 2020; 24: 65-74
- Drawing facilitates children’s reports of factual and narrative information: Implications for educational contexts.Applied Cognitive Psychology. 2009; 23: 953-971
- Research electronic data capture (REDCap)—A metadata-driven methodology and workflow process for providing translational research informatics support.Journal of Biomedical Informatics. 2009; 42: 377-381
- Quality of life as conveyed by pediatric patients with cancer.Quality of Life Research. 2004; 13: 761-762
- Symptom trajectories in children receiving treatment for leukemia: A latent class growth analysis with multitrajectory modeling.Journal of Pain and Symptom Management. 2017; 54: 1-8
- Symptoms in children receiving treatment for cancer—Part I: Fatigue, sleep disturbance, and nausea/vomiting.Journal of Pediatric Oncology Nursing. 2019; 36: 244-261
- A pilot study of the preliminary efficacy of Pain Buddy: A novel intervention for the management of children’s cancer pain.Pediatric Blood & Cancer. 2020; 67e28278
- Development of a mHealth real-time pain self-management app for adolescents with cancer: An iterative usability testing.Journal of Pediatric Oncology Nursing. 2017; 34: 283-294
- Gamification for health and wellbeing: A systematic review of the literature.Internet Interventions. 2016; 6: 89-106
- Evaluation of mobile phone applications to support medication adherence and symptom management in oncology patients.Pediatric Blood & Cancer. 2018; 65 (https://doir.org/10.1002/pbc.27278)e27278
- Content analysis: An introduction to its methodology.3rd Ed. SAGE, 2013
- Symptom characteristics among hospitalized children and adolescents with cancer.Cancer Nursing. 2018; 41: 23-32
- Symptoms in children receiving treatment for cancer—Part II: Pain, sadness, and symptom clusters.Journal of Pediatric Oncology Nursing. 2019; 36: 262-279
- Comparison of good days and sick days of school-age children with cancer reflected through their drawings.Quality of Life Research. 2017; 26: 2729-2738
- Staff perceptions of symptoms, approaches to assessment, and challenges to assessment among children with cancer.Journal of Pediatric Oncology Nursing. 2018; 35: 332-341https://doi.org/10.1177/1043454218767888
- Symptoms and self-management strategies identified by school-age children with cancer using draw-and-tell interviews.Oncology Nursing Forum. 2018; 45: 290-300https://doi.org/10.1188/18.ONF.290-300
- Feasibility and acceptability of a game-based symptom reporting app for children with cancer: Perspectives of children and parents.Supportive Care in Cancer. 2021; 29: 301-310https://doi.org/10.1007/s00520-020-05495-w
- The individual as the organizing principle.in: Bergman L.R. Cairns R.B. Nillson L.G. Nystedt L. Developmental science and the holistic approach. Lawrence Erlbaum Associates, 2000: 34-47
- A comparison of central lines in pediatric oncology patients: Early removal and patient centered outcomes.Pediatric Blood & Cancer. 2014; 60: 1890-1895
- Specialist nurse key worker in children’s cancer care: Professionals’ perspectives on the core characteristics of the role.European Journal of Oncology Nursing. 2016; 24: 70-78
- Enhancing nursing research with children and families using a developmental perspective.in: Miles M.S. Holditch-Davis D. Annual review of nursing research. Springer, 2003: 1-22
- Nausea, pain, fatigue, and multiple symptoms in hospitalized children with cancer.Oncology Nursing Forum. 2011; 38: e382-e393
- Children’s perspective on health-related quality of life during active treatment for acute lymphoblastic leukemia: An advanced content analysis approach.Cancer Nursing. 2015; 38: 49-58
- The oncology nurse coordinator: Role perceptions of staff members and nurse coordinators.Israel Journal Health Policy Research. 2017; 6: 66
- Symptom care at home: A comprehensive and pragmatic PRO system approach to improve cancer symptom care. Journal of.Medical Care. 2019; 57: S66-S72
- Automated monitoring of symptoms during ambulatory chemotherapy and oncology providers’ use of the information: A randomized controlled clinical trial.Supportive Care in Cancer. 2014; 22: 2343-2350
- A survey of mobile technology usage and desires by caregivers of children with cancer.Pediatric Blood & Cancer. 2018; 65e27359
- Guideline for the prevention of acute chemotherapy-induced nausea and vomiting in pediatric cancer patients: A focused update.Pediatric Blood & Cancer. 2017; 64e26542
- The universal standard for identifying health measurements, observations, and documents.https://loinc.org/Date: 2021
- Children’s coping strategies for chemotherapy-induced nausea and vomiting.Oncology Nursing Forum. 2012; 39: 202-209
- Are on-line patient portals meeting test result preferences of caregivers of children with cancer? A qualitative exploration.Pediatric Blood & Cancer. 2018; 65e27306
- Cancer statistics, 2021.CA: A Cancer Journal for Clinicians. 2021; 71: 7-33
- SNOMED International: Leading healthcare terminology worldwide.https://www.snomed.org/Date: 2021
- Development and testing of a multidimensional iPhone pain assessment application for adolescents with cancer.Journal of Medical Internet Research. 2013; 15e51
- Frequency, severity, and distress associated with physical and psychosocial symptoms at home in children and adolescents with cancer.Journal of Pediatric Health Care. 2019; 33: 404-414
- Concept-elicitation phase for the development of the pediatric patient-reported outcome version of the Common Terminology Criteria for Adverse Events.Cancer. 2016; 122: 141-148
- Consensus recommendations from the Children’s Oncology Group Nursing Discipline’s state of the science symposium: Symptom assessment during childhood cancer treatment.Journal of Pediatric Oncology Nursing. 2019; 36: 294-299
- Feeling states: A new approach to understanding how children and adolescents experience symptoms.Cancer Nursing. 2008; 31: 229-238
- Expectations and beliefs about children’s cancer symptoms: Perspectives of children with cancer and their families.Oncology Nursing Forum. 2003; 30: 479-491
Article info
Publication history
Published online: April 28, 2022
Accepted:
April 17,
2022
Received in revised form:
March 18,
2022
Received:
October 5,
2021
Identification
Copyright
© 2022 Elsevier Inc. All rights reserved.