Highlights
- •Parents in pediatric oncology experience nursing presence as ‘being’ and ‘doing’.
- •Nursing presence is essential in the formation of therapeutic nurse-patient relationships.
- •Parents of children with cancer have positive hospital experiences when nurses are present.
Abstract
Background
Nursing presence has been viewed as a valuable way to create therapeutic relationships
and has been linked to better health outcomes for patients and families. However,
whether nursing presence can be described and how parents in pediatric oncology experience
this phenomenon remains unanswered. Therefore, the purpose of this study was to explore
how parents of children with cancer describe and experience nursing presence.
Methods
This study used Giorgi's phenomenological approach to explore nursing presence as
experienced by parents of children with cancer. Ten participants from a pediatric
oncology clinic in Canada were interviewed. Giorgi's approach was used to analyze
these data.
Findings
Based upon participants' descriptions, a structure of nursing presence emerged which
included six constituent features: An attitude of presence, a source of encouragement,
clinical experience and expertise, therapeutic communication, family involvement,
and a sense of home away from home. Most notably, nursing presence as experienced
by parents was characterized by the ‘being’ and ‘doing’ of presence which were equally
important.
Conclusion
The experiences described by parents provided rich and nuanced insights into what
it meant to experience nursing presence in a pediatric oncology setting. This study
provides a structure for this meaning making and expounds on its constituent features,
describing what nursing presence resembles when experienced by parents of children
with cancer.
Practice implications
This study informs nursing practice, policy, and education in ways that are likely
to enhance care and the subsequent well-being of pediatric oncology patients and families.
Keywords
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References
- Nursing presence in a community heart failure program.Nurse Practitioner. 2007; 32: 14-21
- Dealing with fear - from the perspective of adolescent girls with cancer.European Journal of Oncology Nursing. 2012; 16: 286-292
- From novice to expert: Excellence and power in clinical nursing practice.Addison-Wesley Publishing Company, 1984
- Interviews: Learning the crafts of qualitative research interviewing.Sage Publications, 2015
- The gift of listening: JUST listening strategies.Nursing Forum. 2010; 45: 150-158
- Why do parents bring their children to the emergency department? A systematic inventory of motives.International Journal of Family Medicine. 2015; 2015: 1-10
- Nursing presence: An existential exploration of the concept.Scholarly Inquiry for Nursing Practice. 1997; 11
- Patient experiences of caring and person-centredness are associated with perceived nursing care quality.Journal of Advanced Nursing. 2017; 73: 217-227
- The interview: Data collection in descriptive phenomenological human scientific research.Journal of Phenomenological Psychology. 2012; 43: 13-35
- Meta-synthesis of presence in nursing.Journal of Advanced Nursing. 2006; 55: 708-714
- Phenomenology in pediatric cancer nursing research.Journal of Pediatric Oncology Nursing. 2008; 25: 185-192
- Interprofessional communication in healthcare: An integrative review.Nurse Education in Practice. 2016; 19: 36-40
- Ethical challenges when caring for dying children.Nursing Ethics. 2015; 22: 176-187
- Presence.in: Bulechek G.M. McKloskey J.C. Nursing interventions, essential nursing treatments. 2nd ed. 1992: 191-200
- The descriptive phenomenological method in psychology: A modified Husserlian approach.Duquesne University Press, 2009
- The descriptive phenomenological psychological method.Journal of Phenomenological Psychology. 2012; 43: 3-12
- The descriptive phenomenological psychological method.in: Camic P.M. Rhodes J.E. Yardley L. Qualitative research in psychology, expanding perspectives in methodology and design. 2003: 243-273
- The descriptive phenomenological psychological method.in: Willig C. Rogers W.S. The SAGE handbook of qualitative research in psychology. SAGE Publications Ltd., 2017: 176-192
- Healing presence.Journal of Holistic Nursing. 2001; 19: 5-21
- Caring behaviors among nurses: Fostering a conversation of gestures.Health Care Management Review. 2004; 29: 258-267
- What makes love last?: How to build trust and avoid betrayal.Simon & Schuster, Inc., 2012
- Family-centered care during the COVID-19 era.Journal of Pain and Symptom Management. 2020; 60: e93-e97
- Presence: Discovering the artistry in relating.Journal of Holistic Nursing. 1992; 10: 294-305
- Discovering lived experiences through descriptive phenomenology.International Journal of Contemporary Hospitality Management. 2018; 30: 3309-3325
- Development and psychometric assessment of the presence of nursing scale.Nursing Science Quarterly. 2012; 25: 167-175
- Nursing presence: Putting the art of nursing back into hospital orientation.Journal for Nurses in Professional Development. 2014; 30: 70-75
- A Rasch rating scale analysis of the presence of nursing scale-RN.Journal of Applied Measurement. 2016; 17: 476-488
- Family-centered care: Current applications and future directions in pediatric health care.Maternal and Child Health Journal. 2012; 16: 297-305
- Exploring family-centered care among pediatric oncology nurses.Journal of Pediatric Oncology Nursing. 2011; 28: 43-52
- Conceptualizing home and household.Kappa Omicron Nu FORUM. 2016; 19 (Retrieved from): 1-28
- Nursing presence in pediatric oncology: A scoping review.Journal of Pediatric Oncology Nursing. 2021; 39: 99-113
- An explanatory study on the concept of nursing presence from the perspective of patients admitted to hospitals.Journal of Clinical Nursing. 2017; 26: 4313-4324
- Supportive and palliative care needs of families of children who die from cancer: An Australian study.Palliative Medicine. 2008; 22: 59-69
- An exploratory study of nurses’ presence in daily care on an oncology unit.Nursing Forum. 2010; 45: 197-205
- The effect of nursing presence on patient satisfaction.Nursing Management. 2015; 46: 38-44
- Physical distancing works to stop spread of COVID-19.(Retrieved from)
- Developing nurse/parent relationships in the NICU through negotiated partnership.JOGNN - Journal of Obstetric, Gynecologic, and Neonatal Nursing. 2010; 39: 675-683
- Developing effective therapeutic relationships with children, young people and their families.Nursing Children and Young People. 2015; 27: 30-36
- Compassion in pediatric healthcare: A scoping review.Journal of Pediatric Nursing. 2020; 51: 57-66
- Bereaved parents and siblings offer advice to health care providers and researchers.Journal of Pediatric Hematology/Oncology. 2013; 35: 253-259
- “There’s just no way to help, and they did.” Parents name compassionate care as a new domain of quality in pediatric home-based hospice and palliative care.Journal of Palliative Medicine. 2020; 23: 767-776
- Bracketing in qualitative research.Qualitative Social Work. 2012; 11: 80-96
- State of the science of nursing presence revisited: Knowledge for preserving nursing presence capability.International Journal for Human Caring. 2014; 18: 14-29
- Shared humanity and the psychiatric nurse – Patient encounter.Australian and New Zealand Journal of Mental Health Nursing. 1999; 8: 2-8
- Nursing: Human science and human care. A theory of nursing. (pub no. 41-2236).National League for Nursing, 1988
- The importance of being there: Perspectives of social support by adolescents with cancer.Journal of Pediatric Oncology. 2006; 23: 122-134
- Security guide.Zoom Video Communications Inc., 2016 (Retrieved from)
Article info
Publication history
Published online: June 07, 2022
Accepted:
May 27,
2022
Received in revised form:
May 27,
2022
Received:
February 10,
2022
Identification
Copyright
Crown Copyright © 2022 Published by Elsevier Inc. All rights reserved.