The stress associated with parenting and caregiving is compounded when children and
adolescents are diagnosed with chronic conditions or special healthcare needs. The
broad nature of stress requires parents, families, and children to cope with the additional
stress associated with the child's chronic condition or special healthcare needs,
adapt to the child's ongoing care management, and focus on maintaining quality of
life for their families. Further, parent caregivers experience stress and role change
when confronted with the healthcare transition from pediatric to adult healthcare
for their adolescent and young adult children with chronic conditions or special healthcare
needs. Developing resilience through emotional support and living in supportive neighborhoods
may facilitate coping by parents and their children. The role of nursing presence
and parent peer support is integral to mitigating parental stress during adaptation
to stressful situations associated with the child's healthcare.
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