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To become an expert within a week: Children's and parents' experiences of the child being diagnosed with type 1 diabetes and receiving diabetes education – A qualitative interview study

Published:October 25, 2022DOI:https://doi.org/10.1016/j.pedn.2022.10.004

      Abstract

      Purpose

      To explore children's and parents' experiences of the child being diagnosed with type 1 diabetes and receiving diabetes education during hospitalisation.

      Design and methods

      A qualitative interpretive design was applied. Semi-structured interviews with 15 children and their parent(s) were conducted. Data were analysed via thematic analysis.

      Results

      The analysis revealed three themes: To be diagnosed with diabetes turns one's world upside down; It is positive to meet friendly and helpful healthcare professionals; and Diabetes education is overwhelming but required.

      Conclusions

      To be hospitalised and receive a diabetes diagnosis is overwhelming. The family must learn, in a short time, the basic skills to manage the condition. While learning, the child may fluctuate between being active and passive. In this vulnerable situation, it is positive to meet helpful healthcare professionals. Children find the motivation to learn, as they want to self-manage and be independent. All necessary education is given, but often the families would like to be more actively involved in the teaching. Sometimes, the teaching is also very compressed.

      Practice implications

      It is important to be aware of the vulnerable situation of the family and to adjust education to the fluctuations of the child. Teaching should be simplified and broken down stepwise, using pictures, artefacts, etc., to support the learning. More involvement may make education even more engaging and interesting. It has to be considered whether the education can be compressed into too short a time, making it difficult to transfer to the everyday lives of the families.

      Keywords

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      References

        • Braun V.
        • Clarke V.
        Using thematic analysis in psychology.
        Qualitative Research in Psychology. 2006; 3: 77-101
        • Braun V.
        • Clarke V.
        Successful qualitative research: A practical guide for beginners.
        SAGE, 2013
        • Colson S.
        • Côté J.
        • Gentile S.
        • Hamel V.
        • Sapuppo C.
        • Ramirez-Garcia P.
        • Lagouanelle-Simeoni M.
        An integrative review of the quality and outcomes of diabetes education programs for children and adolescents.
        The Diabetes Educator. 2016; 42: 549-584
        • Creswell J.
        • Poth C.
        Qualitative inquiry and research design: Choosing among five approaches.
        4 th ed. SAGE, 2017
        • Dahlberg K.
        • Dahlberg H.
        • Nyström M.
        Reflective lifeworld research.
        2nd ed. Studentlitteratur, 2008
        • Databeskyttelsesloven
        Lov om supplerende bestemmelser til forordning om beskyttelse af fysiske personer i forbindelse med behandling af personoplysninger og om fri udveksling af sådanne oplysninger (LOV nr 502 af 23/05/2018 ) [General Data Protection Regulation].
        • Edhlund B.
        • McDougall A.
        NVivo 12 Essentials.
        Form & Kunskap, 2020
        • Ekra E.M.R.
        • Korsvold T.
        • Gjengedal E.
        Characteristics of being hospitalized as a child with a new diagnosis of type 1 diabetes: A phenomenological study of children’s past and present experiences.
        BMC Nursing. 2015; 14: 4
        • Ergun-Longmire B.
        • Clemente E.
        • Vining-Maravolo P.
        • Roberts C.
        • Buth K.
        • Greydanus D.E.
        Diabetes education in pediatrics: How to survive diabetes.
        Disease-a-Month : DM. 2021; 67: 101153
        • Fereday J.
        • Muir Cochrane E.
        Demonstrating rigor using thematic analysis: A hybrid approach of inductive and deductive coding and theme development.
        International Journal of Qualitative Methods. 2006; 5: 80-92
        • Haslund-Thomsen H.
        • Hasselbalch L.A.
        • Laugesen B.
        Parental experiences of continuous glucose monitoring in Danish children with type 1 diabetes mellitus.
        Journal of Pediatric Nursing. 2020; 53: e149-e155
        • Hinder S.
        • Greenhalgh T.
        "This does my head in". Ethnographic study of self-management by people with diabetes.
        BMC Health Services Research. 2012; 12: 83
        • Hippe E.
        • Himm H.
        Læring gennem oplevelse, forståelse og handling.
        2nd ed. 2007 (Gyldendal)
        • Holmström M.R.
        • Häggström M.
        • Söderberg S.
        Experiences from parents to children with diabetes type 1.
        JSM Health Education Primary Health Care, 2018
        • International Diabetes Federation
        Diabetes facts & figures.
        • Jönsson L.
        • Hallström I.
        • Lundqvist A.
        A multi-disciplinary education process related to the discharging of children from hospital when the child has been diagnosed with type 1 diabetes - a qualitative study.
        BMC Pediatrics. 2010; 10: 36
        • Kelo M.
        • Martikainen M.
        • Eriksson E.
        Self-care of school-age children with diabetes: An integrative review.
        Journal of Advanced Nursing (John Wiley & Sons, Inc.). 2011; 67: 2096-2108
        • Komiteloven
        Bekendtgørelse af lov om videnskabsetisk behandling af sundhedsvidenskabelige forskningsprojekter og sundhedsdatavidenskabelige forskningsprojekter (LBK nr 1338 af 01/09/2020).
        • Kortesluoma R.
        • Hentinen M.
        • Nikkonen M.
        Conducting a qualitative child interview: Methodological considerations.
        Journal of Advanced Nursing. 2003; 42: 434-441
        • Lawson V.L.
        • Bundy C.
        • Harvey J.N.
        The influence of health threat communication and personality traits on personal models of diabetes in newly diagnosed diabetic patients.
        Diabetic Medicine. 2007; 24: 883-891
        • Lovell N.
        The "SKIP" course: A programme for children and young people with diabetes.
        Journal of Diabetes Nursing. 2012; 16: 247-252
        • Nilsson S.
        How young people can learn about newly diagnosed type 1 diabetes.
        Nursing Children and Young People. 2016; 28: 22-26
        • Parahoo K.
        Nursing research: Principles, process and issues.
        3th ed. Palgrave Macmillan, 2014
        • Patton S.R.
        • Clements M.A.
        Psychological reactions associated with continuous glucose monitoring in youth.
        Journal of Diabetes Science and Technology (JDST). 2016; 10: 656-661
        • Peterson A.
        • Hanberger L.
        • Akesson K.
        • Bojestig M.
        • Andersson Gäre B.
        • Samuelsson U.
        Improved results in Paediatric diabetes care using a quality registry in an improvement collaborative: A case study in Sweden.
        PLoS One. 2014; 9 (Article e97875)
        • Phelan H.
        • King B.
        • Anderson D.
        • Crock P.
        • Lopez P.
        • Smart C.
        Young children with type 1 diabetes can achieve glycemic targets without hypoglycemia: Results of a novel intensive diabetes management program.
        Pediatric Diabetes. 2018; 19: 769-775
        • Schreiner B.
        Diabetes education in hospitalized children.
        Critical Care Nursing Clinics of North America. 2013; 25: 101-109
        • Sundhedsloven
        Bekendtgørelse af sundhedsloven (LBK nr 903 af 26/08/2019).
        Danish Law of Healthcare, 2019
        • Tsvyatkova
        • Damyanka
        • Storni
        • Cristiano
        Investigating issues related to pediatric diabetes education: problems and barriers.
        in: Paper presented at the 8th International Conference on Pervasive Computing Technologies for Healthcare. 2014
        • WHO
        Classification of diabetes mellitus.
        • WHO
        Diabetes.
        • Woodward A.
        • Dawes S.
        • Dolan D.
        • Wallymahmed M.
        What education do people with type 1 diabetes want and how should we provide it? Results of a survey of patients with type 1 diabetes.
        Practical Diabetes International. 2006; 23: 295-298
        • World Medical Association
        World medical association declaration of Helsinki ethical principles for medical research involving human subjects.