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The self-management and transition manual “ALL YOU NEED IS LOVE” for adolescents with chronic kidney disease

  • Author Footnotes
    1 Current affiliation: Division of Special Education and Counseling, California State University, Los Angeles.
    Yunzhen Huang
    Correspondence
    Corresponding author at: 5151 State University Dr, Los Angeles, CA 90032, USA.
    Footnotes
    1 Current affiliation: Division of Special Education and Counseling, California State University, Los Angeles.
    Affiliations
    Department of Allied Health Sciences, School of Medicine, University of North Carolina at Chapel Hill, Bondurant Hall, CB #7120, Chapel Hill, NC 27599-7120, USA
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  • Eniko Rak
    Affiliations
    Department of Allied Health Sciences, School of Medicine, University of North Carolina at Chapel Hill, Bondurant Hall, CB #7120, Chapel Hill, NC 27599-7120, USA
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  • Richard A. Faldowski
    Affiliations
    Department of Biostatistics, Gillings School of Global Public Health, University of North Carolina at Chapel Hill, 170 Rosenau Hall, CB #7400, Chapel Hill, NC 27599-7400, USA
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  • Author Footnotes
    2 Current affiliation: School of Osteopathic Medicine, Campbell University.
    Meaghan Nazareth
    Footnotes
    2 Current affiliation: School of Osteopathic Medicine, Campbell University.
    Affiliations
    Department of Pediatrics, School of Medicine, University of North Carolina at Chapel Hill, 260 MacNider Hall, CB# 7220, Chapel Hill, NC 27599-7220, USA
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  • Jessica Ryan
    Affiliations
    Department of Allied Health Sciences, School of Medicine, University of North Carolina at Chapel Hill, Bondurant Hall, CB #7120, Chapel Hill, NC 27599-7120, USA
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  • Author Footnotes
    3 Current affiliation: Department of Pediatrics, Boston Children's Hospital.
    Karina Javalkar
    Footnotes
    3 Current affiliation: Department of Pediatrics, Boston Children's Hospital.
    Affiliations
    Department of Pediatrics, School of Medicine, University of North Carolina at Chapel Hill, 260 MacNider Hall, CB# 7220, Chapel Hill, NC 27599-7220, USA
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  • Author Footnotes
    4 Current affiliations: Department of Psychiatry, University of Colorado School of Medicine and Rocky Mountain Pediatrics, PC.
    Brian Pitts
    Footnotes
    4 Current affiliations: Department of Psychiatry, University of Colorado School of Medicine and Rocky Mountain Pediatrics, PC.
    Affiliations
    Department of Pediatrics, School of Medicine, University of North Carolina at Chapel Hill, 260 MacNider Hall, CB# 7220, Chapel Hill, NC 27599-7220, USA
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  • Maria Díaz-González de Ferris
    Affiliations
    Department of Pediatrics, School of Medicine, University of North Carolina at Chapel Hill, 260 MacNider Hall, CB# 7220, Chapel Hill, NC 27599-7220, USA
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  • Author Footnotes
    1 Current affiliation: Division of Special Education and Counseling, California State University, Los Angeles.
    2 Current affiliation: School of Osteopathic Medicine, Campbell University.
    3 Current affiliation: Department of Pediatrics, Boston Children's Hospital.
    4 Current affiliations: Department of Psychiatry, University of Colorado School of Medicine and Rocky Mountain Pediatrics, PC.
Published:November 14, 2022DOI:https://doi.org/10.1016/j.pedn.2022.10.006

      Highlights

      • A patient education manual for adolescents with chronic kidney disease was developed.
      • The manual improved self-management and health care transition readiness over time.
      • The manual showed additional benefits in improving self-advocacy and mindfulness.
      • Adding a mindfulness training did not bring additional benefits to the manual.

      Abstract

      Purpose

      To examine the effects of “ALL YOU NEED IS LOVE”, a novel six-week, self-directed patient education manual designed to improve chronic kidney disease knowledge/self-management, health care transition readiness, self-advocacy, and mindfulness skills among adolescents with chronic kidney disease.

      Design and methods

      We enrolled 49 adolescents aged 11–17 years (mean age 14.7 ± 1.9; 53.1% males) from a university hospital kidney center who had CKD stages 3 and greater, who were randomly assigned into the “ALL YOU NEED IS LOVE” patient education only group (n = 31) or the “ALL YOU NEED IS LOVE” patient education plus mindfulness training group (n = 18). Participants completed Qualtrics surveys at baseline, post-intervention, and three-month follow-up. The survey included measures of outcome variables (i.e., self-management/transition readiness, patient self-advocacy, and mindfulness), and an additional demographic questionnaire was included in the baseline survey. Multilevel model analyses were used to examine the effects of group and time on the outcome variables.

      Results

      Multilevel model analyses showed an overall significant time effect across all outcome variables in both groups. However, the group effects were not statistically significant across the outcome variables.

      Conclusions

      Both interventions significantly increased participants' self-management/HCT readiness, self-advocacy, and mindfulness over time. Mindfulness training may not bring additional benefits to the “ALL YOU NEED IS LOVE” education manual.

      Practice implications

      Pediatric nurses and clinicians may utilize the self-directed “ALL YOU NEED IS LOVE” manual to increase self-management/transition readiness, self-advocacy, and mindfulness among adolescents with chronic kidney disease.

      Keywords

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