Highlights
- •DMQ-Sp is useful to measure self-care management adherence in T1DM pediatric patients
- •DMQ-Sp has been adapted for T1DM pediatric patients using CGM
- •DMQ-Sp evaluate diabetes structured therapeutic education programs' outcomes
- •DMQ-Sp has an acceptable parent-child agreement
Abstract
Evaluation of the degree of adherence to self-care among Spanish type 1 diabetes (T1DM)
pediatric population lacks of a validated tool.
Purpose
To cross-culturally adapt and determine the psychometric properties of the Spanish
version of the Diabetes Management Questionnaire to assess the degree of adherence
to self-care among children with T1DM.
Methods
Translation, back-translation, and patient suggestions, were considered to obtain
the Spanish version (DMQ-Sp). A cross-sectional study was conducted with 323 children
(aged 8–18 years) with T1DM and their parents to determine internal reliability, structural
validity, and external validity. Responsiveness to change was analyzed through a prospective
longitudinal study involving 102 newly diagnosed T1DM patients. Psychometrics were
evaluated for the entire sample and stratified by age (8–12 and 13–18 years).
Results
A total of 323 children with T1DM [49.8% female; age 13.3 ± 2.8 years; 155 aged 8–12;
glycated hemoglobin (HbA1c) value 7.7 ± 1.0%] answered the Spanish final version.
The internal consistency Cronbach's alpha was 0.76 and intraclass correlation coefficient
0.84. Test-retest reliability was r = 0.84 (p < 0.001). Fit index of structural validity was >0.7. External validity correlated
inversely with HbA1c (r = −0.39; p < 0.001). The DMQ-Sp score increased significantly after 6 months of receiving
the full therapeutic education program (TEP) (baseline 57.07 ± 10.81 vs. 6 months
78.80 ± 10.31; p < 0.001).
Conclusion
The DMQ-Sp is reliable, valid, and sensitive to change in a large sample of children
(aged 8–18 years) with T1DM and their parents.
Practice implications
DMQ-Sp can be a useful tool for diabetes teams to identify adherence to different
tasks and to evaluate TEPs.
Keywords
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Article info
Publication history
Published online: November 26, 2022
Accepted:
November 14,
2022
Received in revised form:
November 8,
2022
Received:
July 28,
2022
Publication stage
In Press Corrected ProofIdentification
Copyright
© 2022 Elsevier Inc. All rights reserved.
