Abstract
Purpose
The healthcare needs of parents of adolescents with congenital heart disease (CHD)
have been under-investigated as no valid and reliable tools have been developed for
assessing their needs. Therefore, this study aims to develop and validate the Parents'
Healthcare Needs Scale for adolescents with CHD (PHNS-CHD).
Design and methods
A multi-method approach and multi-phase design were employed. Phase one referred to
generating scale items based on emerging themes in the literature, and phase two showed
the validation process, divided into three steps. Step one tested the content and
face validity of the first version of the PHNS-CHD. After that, step two described
the initial psychometric validation process of scale using an exploratory factorial
analysis (EFA). Then, step three confirmed the PHNS-CHD factorial structure and assessed
its internal consistency.
Results
The PHNS-CHD showed evidence of face and content validity, adequate construct, and
internal consistency and stability. Specifically, it had 22 items grouped into five
domains, labeled as follows: Healthcare education to the child; to be supported as
a parent, clinical support to the child, the continuum of care to the child; emotional
support to the child.
Conclusions
The PHNS-CHD is a psychometrically robust measure for assessing the healthcare needs
of parents of adolescents with CHD.
Practice implications
The PHNS-CHD might help clinicians, especially pediatric nurses, assess the healthcare
needs of parents of adolescents with CHD and design adequate care plans for the whole
family.
Keywords
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Article info
Publication history
Published online: December 16, 2022
Accepted:
December 7,
2022
Received in revised form:
October 31,
2022
Received:
January 29,
2022
Publication stage
In Press Corrected ProofIdentification
Copyright
© 2022 Elsevier Inc. All rights reserved.
