Highlights
- •The perception of quality of life in asthma is associated with variables such as control and adherence to treatment.
- •Perception of quality of life is related to perceived threat of disease, better mental health, and healthy family styles. • Jointly assessing psychological variables and medical indicators is necessary for the improvement of quality of life.
Abstract
Background
Quality of life (QoL) is a widely studied term concerning asthma because it allows
the impact of the disease on the patient's life to be assessed through the patient's
perception. The study aims to analyze which asthma-related, psychological, and family
variables affect the QoL of adolescents with asthma.
Design and methods
This cross-sectional design involves 150 patients diagnosed with asthma aged between
12 and 16 years. The patients' emotional symptomatology, the threat of illness, self-esteem,
bonds, quality of life, family, and disease variables were assessed. Statistical analyses
were performed using QCA models.
Results
The results indicate that girls have a poorer QoL, and age is negatively associated.
QCA models found that the variables that best explained the quality of life of these
patients, in the case of the medical indicators, were control, good compliance, shorter
diagnosis times, and improvement. Regarding psychological variables: a lower threat
of illness, less emotional distress, and better parental mood explained the high QoL.
Conclusions and practical implications
Adolescent QoL is affected by variables related to their asthma that are beyond their
control and other psychological and family variables that may increase the perception
of their QoL.
Keywords
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References
- Leventhal’s common-sense model and asthma control: Do illness representations predict success of an asthma rehabilitation?.Journal of Health Psychology. 2019; 24: 327-336
- Autopercepción de enfermedad en pacientes con enfermedades crónicas.SEMERGEN - Medicina de Familia,44 (5),335-341. 2017;
- Análisis de la dimensionalidad de la Escala de Autoestima de Rosenberg en una muestra de adolescentes valencianos.Rev Psicol Universitas Tarraconensis. 2000; 22
- Characterization of stress in low-income, inner-city mothers of children with poorly controlled asthma.Journal of Urban Health. 2017; 94: 814-823
- Stress and quality of life in urban caregivers of children with poorly controlled asthma: A longitudinal analysis.Journal of Pediatric Health Care. 2015; 29: 536-546
- Asthma in adolescence: Is there any news?.Pediatric Pulmonology. 2017; 52: 129-138
- The brief illness perception questionnaire.Journal of Psychosomatic Research. 2006; 60: 631-637
- Asthmatic adolescent anxiety and adaptation to illness.European Respiratory Journal. 2018; 52: PA1279
- Evaluación del bienestar psicológico en estudiantes adolescentes argentinos. [Psychological assessment of psychological well being in Argentine adolescent students].Revista de Psicología. 2000; 18: 35-67
- Psychological flexibility in parents of children with asthma: Analysis using a structural equation model.Journal of Child and Family Studies. 2017; 26: 2610-2622
- Calidad de vida en las enfermedades alérgicas.Tratado de Alergología. 2007; : 1709-1734
- Gender differences in asthma perception and its impact on quality of life: A post hoc analysis of the PROXIMA (Patient Reported Outcomes and Xolair((R)) In the Management of Asthma) study.Allergy, Asthma, and Clinical Immunology. 2019; 15: 65
- Health-related quality of life and asthma among United States adolescents.Journal of Pediatrics. 2015; 166: 358-364
- Psychological burden of asthma in adolescents and their parents.Journal of Asthma. 2021; 59: 1116-1121
- Configural analysis of the drinking man: Fuzzy-set qualitative comparative analyses.Addictive Behaviors. 2012; 37: 541-543
- Primary and secondary caregiver reports of quality of life in pediatric asthma: Are they comparable?.Applied Research in Quality of Life. 2018; 13: 371-383
- Mortality due to asthma in Spain, 1990-2015.Semergen. 2019; 45: 449-457
- The strengths and difficulties questionnaire: A pilot study on the validity of the self-report version.European Child & Adolescent Psychiatry. 1998; 7: 125-130
- Severe asthma and quality of life.World Allergy Organization Journal. 2017; 10: 28
- Enfermedad crónica pediátrica : estudio comparativo de los niveles de ansiedad, depresión y autoestima.Revista de Psicología Clínica Con Niños y Adolescentes. 2018; 5: 48-53
- Predicting health-related quality of life in Spanish adolescents with allergic rhinoconjunctivitis and bronchial asthma.Psychology, Health & Medicine. 2021; 1–13
- Psychosocial factors and chronic illness as predictors for anxiety and depression in adolescence.Frontiers in Psychology. 2020; 11568941
- The common sense represen- tation of illness danger.in: Rachman S. Contributions to Medical Psychology. Pergamon P, 1980: 17-30
- The common-sense model of self-regulation (CSM): A dynamic framework for understanding illness self-management.Journal of Behavioral Medicine. 2016; 39: 935-946
- The psychological adjustment of children with asthma: Study of associated variables.The Spanish Journal of Psychology. 2010; 13: 353-363
- Changes in asthma self-management knowledge in inner city adolescents following developmentally sensitive self-management training.Patient Education and Counseling. 2018; 101: 687-695
- Pediatric asthma.in: Roberts M. Steele R. Handbook of pediatric psychology. The Guilford Press, 2017: 227-240
- Quality of life in children with asthma: A developmental perspective.Journal of Pediatric Psychology. 2015; 40: 672-679
- Illness uncertainty and illness intrusiveness as predictors of depressive and anxious symptomology in college students with chronic illnesses.Journal of American College Health. 2017; 65: 352-360
- I’m not good for anything and That’s why I’m stressed: Analysis of the effect of self-efficacy and emotional intelligence on student stress using SEM and QCA.Frontiers in Psychology. 2020; 11: 295
- Estilos educativos materno y paterno: Evaluación y relación con el ajuste adolescente.Anales de Psicologia. 2007; 23: 49-56
- Evaluación de dificultades emocionales y comportamentales en población infanto-juvenil: El cuestionario de capacidades y dificultades (SDQ).Papeles de Psicología. 2016; 37: 14-26
- Padres, profesores y pares: contribuciones para la autoestima y coping en los adolescentes.Anales de Psicologia. 2014; 30: 656-666
- Redesigning social inquiry: Fuzzy sets and beyond.University of Chicago Press, 2008
- Society and the adolescent self-image.Princeton University Press, NJ1965
- Health-related quality of life and asthma among United States adolescents.Pediatrics. 2015; 136 (S266 LP-S267)
- Qualitative comparative analysis vis-a-vis regression.Studies in Comparative International Development (SCID). 2005; 40: 3-26
- A comparative study of psychological problems of children suffering from cancer, epilepsy and asthma.Intellectual Discourse. 2017; 25
- GEMA 5.2. Guía Española para el Manejo del Asma.Luzan5, 2022
- Association of asthma illness representations and reported controller medication adherence among school-aged children and their parents.Journal of Pediatric Health Care. 2017; 31: 703-712
- Adolescent girls with asthma have worse asthma control and health-related quality of life than boys—A population based study.Pediatric Pulmonology. 2017; 52: 866-872
- Effects of poor asthma control, insomnia, anxiety and depression on quality of life in young asthmatics.Journal of Asthma. 2016; 53: 398-403
- Comorbidity and health-related quality of life in patients with severe chronic obstructive pulmonary disease attending Swedish secondary care units.International Journal of Chronic Obstructive Pulmonary Disease. 2015; 10: 173-183
- Brief Illness Perception Questionnaire (Brief IPQ).Journal of Physiotherapy. 2012; 58: 202
- Chronic respiratory disease questionnaire (CRQ-SAS): Analysis of psychometric properties.Archivos Argentinos de Pediatria. 2019; 117: 149-155
- Factor structure of the hospital anxiety and depression scale in adolescent patients with chronic disease.Archivos Argentinos de Pediatría. 2019; 117: 252-258
- Psychometric properties of the questionnaire on threat perception of chronic illnesses in pediatric patients.Revista Latino-Americana de Enfermagem. 2020; 28
- Are asthma patients at increased risk of clinical depression? A longitudinal cohort study.Journal of Asthma. 2016; 53: 43-49
- Validez y sensibilidad al cambio de la versión española autoadministrada del cuestionario de la enfermedad respiratoria crónica (CRQ-SAS).Archivos de Bronconeumologia. 2011; 47: 343-349
- Sociodemographic variables, risk factors, and protective factors contributing to youth recidivism.Psicothema. 2019; 31: 128-133
- Calidad de vida relacionada con la salud, percepción de enfermedad, felicidad y emociones negativas en pacientes con diagnóstico de artritis reumatoide.Acta Colombiana de Psicología. 2017; 20: 49-69
- Quality of Life Working Group.1994
- Asthma.
- The hospital anxiety and depression scale.Acta Psychiatrica Scandinavica. 1983; 67: 361-370
Article info
Publication history
Published online: January 05, 2023
Accepted:
December 28,
2022
Received in revised form:
December 24,
2022
Received:
September 4,
2022
Publication stage
In Press Corrected ProofIdentification
Copyright
© 2022 Elsevier Inc. All rights reserved.