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Issues and controversies in chronic illness research are discussed, with data and examples from a program of research dealing with children and adolescents with diabetes. The key differences that demand consideration include prevalence, developmental issues, measurement, cultural issues, the lack of viable models, use of controls, the importance of the family, and ethical concerns.
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Footnotes
1Supported by grants from NINR (RO1NR04009), NIDDK (R29DK39397), the Culpeper Foundation, the University of Pennsylvania Research Foundation to Margaret Grey; and Individual NRSA (1F31NR07232) to Susan Sullivan-Bolyai. Some of the work was performed in and supported by the Yale Children's Clinical Research Center (MO1-RR06022, General Clinical Research Centers Program, National Center for Research Resources, N1H).
1Presented in part at the Annual Dissemination Conference, Center for the Study of Serious Illness, University of Pennsylvania, March 1996.
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© 1999 W.B. Saunders Company. Published by Elsevier Inc.
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